For those of you who also read my bio, you know that I am a fitness expert as well as a gluten free/celiac blogger! Well, the celiac diagnosis has taken a toll on my health, not to mention the hypothyroid problems that came along with the gluten allergy.
I love working out. I really do. Admittedly, I haven’t been adhering to my own standards and beliefs because honestly I just haven’t wanted to. I spent the last 8 months trying to figure things out, frustrate myself and run myself in circles just with the celiac disease – let alone work out.
Yesterday, I ran the Hell Run 5k with my husband and today – I hurt. My knees throb, my back aches, my shoulders are sore and my core is tender. When I ran the Mud Ninja in July, I felt fine. What happened to this fit girl in the picture above? This is what I frequently say to myself almost every day when I look in the mirror. Sure, you might not notice anything in the photos but I feel the difference.
I feel weak.
I feel vulnerable.
So I decided today will be my last day feeling weak and vulnerable. Starting tomorrow, I’m taking control of my health. I’m taking control of my fitness. I’m taking control of my diet.
October 1, 2012 is the day I take control.
I saw online that October is Celiac Sprue Awareness Month, but so is May so I’m not entirely sure which one is correct. But, I think its a great place to get started. I’ve purchased all my “whole” foods. No more snacky snacks. No more processed junk. Just good, whole foods.
Steak, fish, rice, potatoes, green beans, sweet potatoes, tuna, spinach and berries. That’s it for the next few weeks. I’ve got my coolers out, my containers ready and my food prepped. Preparation is key. I know how to do all of this – I just need to stick with it!
Back to my workout regimen of 5 days per week. It feels good for me to be in the gym. I need to sweat and pump iron
I’m incredibly busy the next 10 weeks and I absolutely have to make time for myself.
No excuses. Hold me to it!
Who wants to commit to an October change with me? Post your October resolutions below and let’s get this party started!!!
I’m going to promise Coach I will take him to the park at least 3-4 days per week so he can get exercise too!
Today my husband and I ran the 2012 Hell Run at Buckeye Lake in Ohio to celebrate our 5 year wedding anniversary. Our in-laws even came out to watch the event and they grabbed some great pictures. We were starved after the event and decided to head back towards our house. I saw on Find Me Gluten Free that Red Robin had gluten free menu and after some internet searching found that they even have a gluten free bun!
This trip was not healthy by any means but I figured we just did this 5k right with obstacles so I decided to indulge in a gluten free cheeseburger. After all, I have to try it for all of you right?
This was a GREAT cheeseburger. Not only did they give me the gluten free bun but they cooked the french fries completely separate so they wouldn’t be contaminated with the other fried gluteny stuff. This was so exciting! I don’t think I’ve had french fries in months. The bun was fluffy and big, the burger was juicy and it hit the spot perfect. My husband even got a gluten free bun and shared my fries, which he enjoyed as well!
Best part is not feeling sick or bloated after my meal. 2 meals in a row – out in public – without getting sick! WooHoo
Highly recommended! They were very sensitive to my celiac disease and gluten free needs.
*Although I do smell like a stinky, greasy, oniony burger – even after showing and playing in the mud*
Happy 5 year anniversary to my loving, wonderful husband who is also my best friend. The past few years have been quite the journey and I don’t think I could have gotten through everything without his never ending support.
We had a $50 gift card to Cameron Mitchell and a $20 gift card from Open Table (which is an awesome reservation app) – so spending a bit more on dinner for our Anniversary didn’t seem that bad. Ocean Club is pricey. 2 drinks each and dinner for 2 was $120 plus tip.
Ocean Club at Easton Town Center is a celebration restaurant! Somewhere you go when you have something awesome to spend the money on like an anniversary, engagement or graduation. I just love this place. All of their menu’s can be found online. I think their gluten free menu is pretty extensive!
I don’t like that they took my absolute favorite meal off them menu – MahiMahi. It was the best I’ve found since Aruba on our Honeymoon. But they offer tons of other seafood, fish and steak items. Their regular menu is 3 pages or so – this picture is just of the gluten free options!
I decided on the Filet. Cooked to perfection, it melted in my mouth. Delicious!
Aaron went with the Blackened Snapper and said it was the best meal he’s had in a really long time.
We shared 2 sides – a loaded baked potato and corn – both were simply delightful.
This was not gluten free on a diet. This was a celebration dinner. We didn’t even finish that potato it was so big. I think 3 people could have shared it. The corn tasted so great. A little onion but still sweet. Interesting combo we both enjoyed.
It’s been 3 hours since we ate and I still don’t have a stomach ache or bloating. My joints feel good and I haven’t had to run to the restroom yet!
We finished the night off with a trip to Barnes and Noble to check out the latest books and then a hop, skip and jump over to Swarovski – where I picked up this little gem. I LOVE it!!! Thank you Aaron – I love you.
May everyone have as wonderful of an anniversary as we did tonight
Looking back upon my teen years, it’s no hidden fact that I hated school. I used to skip class to go to the grocery store or mow my grandparents lawn. When I turned 17, I moved in with my grandparents to take care of them and help them around the house. My grandmother suffered from severe emphysema from smoking for over 60 years and was on an oxygen tank. It’s actually a complete shock she didn’t blow up our house from smoking while on oxygen! I just despised being stuck in a classroom all day.
Part of the issue was that I despised waking up to go to school. That was a constant battle with my Mom. Maybe because I have just been a night owl my whole life so it’s really hard to wake up at 6am when you go to bed at 2am. If you ask my mother, she will tell you story, upon story, about me writing notes on my door and locking it “being too sick” from school and days when I flat our refused to go to school. But the more I look into it, the more I realize that the Celiac is the likely culprit of this!
Most of the days I didn’t feel well but I never understood why. I just knew my stomach always hurt and I constantly suffered from diarrhea. My mom thought I suffered from severe hypochondria because it always seemed like there was something wrong with me. Headaches, exhaustion, stomach pains… you name it, I felt like I had it. We frequented doctors about my various ailments and each time she got so mad! Allergy testing, heart rhythm testing. asthma testing, cysts on my ovaries, irritable bowel syndrome diagnosis. It never ended…. or so it felt that way!
Fast forward to my mid-20’s. Just married, promoted to manager at work… I complained about everything. It seemed there was always something physically wrong with me. The sleeping patterns started to emerge again – up all night, tired all day. Restless sleep. More like laying than sleeping!
From constant battles with headaches, tension pain, joint pain and being tired, to be bigger problems of the last few years:
From the time I went to the urgent care center because I thought I was suffering from a heart attack (turns out the doctor said my pants were too tight causing heartburn – no joke)
to the emergency room visit when my ear drum exploded in the pool (from pressure due to extreme ear wax build up – seriously) – what the hell did my new husband think?
to my knee surgery in 2010 – Lateral Release, no cartilage left in my joint – my knee now floats… (who has a floating knee?)
to my miscarriage in 2011 – that was a complete nightmare
It’ wasn’t until last year that I think everyone took it seriously. My symptoms were all leading up to the greater problem of celiac. All those headaches. All the trips to the bathroom. All the weird symptoms and health problems over the years, were likely caused by a condition no one diagnosed until I turned 30.
I read an article that said it takes 6-10 years on average for someone to actually be diagnosed with celiac disease.
Since I was diagnosed, I’ve asked my mom and sister to get tested repeatedly. She asked her general practitioner about the testing and he said if she didn’t suffer from bowel distress, she doesn’t need the test. That could be further from the truth. She has plenty of the other symptoms of the disease. This shows you how misinformed doctors are about Celiac disease.
I’m convinced my uncle had celiac disease – he died from pancreatic cancer in 2005.
2 family members on my mother’s side suffer from schizophrenia. Studies show a correlation between undiagnosed celiac disease and higher incidents of schizophrenia.
All of these signs point to problems in the family. Yet the doctor tells her she doesn’t need tested. I’m not a Phd, but I think I probably know more about celiac disease than him.
I feel like I’ve gone off on a tangent but I have a point!
Growing up I had the signs. All the signals pointed towards celiac disease but it took me countless doctors and problems to actually find someone who understood the disease to make a correct diagnosis.
Don’t discount your kids if they start having them!
If your family members don’t have bowel problems but suffer from other symptoms like headache, exhaustion or the 200 other symptoms of celiac disease… continue to educate them on celiac until they get tested!
Don’t give up on people. Don’t brush of the symptoms.
1 in 133 people suffer from celiac disease and it is highly misdiagnosed. If you have confirmed celiac, it is likely your family could potentially suffer from the same – especially children or parents.
We have to do this as a community. We have to be supportive of others and unite together to understand and encourage each other in the lengthy process. We have to help those who were like us – having people question our integrity, making us feel “crazy” with our symptoms.
If you have ANY food allergies, this is the app for you. Download ShopWell immediately. This is by far the best app I’ve ever used in the grocery store. You can fill out your food sensitivity profile, scan the food and poof you know if you can eat it or not!! I’ve used this app for the past few months and it really is beneficial at the grocery story. I know I must look like an idiot scanning all my food, but I don’t care anymore. I just do my own thing.
The one downfall of this application is that the more obscure brands and generic’s don’t usually show up. But it sure is nice to know which Uncle Ben’s rice pack has gluten and which doesn’t!
It’s official! I’m completely addicted to ACURE Organics products. I just keep telling myself I only need one product at a time.
After I read an article in July about products containing gluten, I’ve been more conscious about what I’m putting in and ON my body. I stumbled upon this shampoo and conditioner at Earth Fare and decided to give it a try. I am a self admitted shampoo snob so spending $10/bottle wasn’t much for me but I realize it can be a little steep. Totally Worth It!
My hair feels just as good as it did using $20/bottle Pureology shampoo and conditioner. I know it’s gluten free and I trust it’s not making me sick. Score!
Here is what their website says about the shampoo and conditioner:
Provides lasting moisture to even the most dry and damaged hair leaving it soft, manageable and ready to rock. Organic Argan Oil + Argan Stem Cells, CoQ10, and Organic Sea Buckthorn Oil–high in Omega 7, make up our patent-pending Triple Moisture System. Pumpkin Seed Oil –high in Omega 3 and 6 fatty acids, adds shine. Hair repair with serious flair. Safe for color treated hair.
Next Up! I found a coupon at Earth Fare for their lotions – so I figured – why not?
Non-greasy. Great smelling. Soaks in the skin perfectly and it’s gluten free. You can’t beat it!
I don’t know about you- but when I have gluten or aren’t eating properly, my skin gets SO dry. Especially from the Hashimoto’s Hypothyroid problems, sometimes I feel like a snake shedding my skin. For those of you suffering from Celiac Dermatitis, this might be a great product line for you to help calm your skin.
Here is what ACURE says about this product on their website:
It’s been a long day. Luckily this calming lotion is here to help you decompress. Super moisturization plus the calming effects of lavender and lotus flower you say? If we hadn’t made it, we’d be thanking the people that did. With nourishing Omega 3 fatty acids from organic pumpkin seed and argan oil!
My new addiction. I usually use Neutrogena face lotion with SPF 15 on a daily basis but it really can make my skin feel oily. I typically suffer from dry skin, so it is odd going to something that makes my face oily. The ACURE day cream goes on so smooth, non greasy and makes my face feel like a baby’s bottom. I love it.
The only thing I wish with this product is that it had sunscreen to protect my face from the UV rays of the sun. Because my skin is so fair and freckled, I really try to make sure I’m wearing sunscreen to protect it, especially as I’m getting older.
Face the day with Gotu Kola Stem Cells, shown to firm and help your skin fight environmental damage and free radicals, and 1% Chlorella Growth Factor, shown to support collagen and elastin fibers. This powerhouse combo helps fight off the signs of aging with a one-two punch. Easily Absorbed Moisture + Cell Renewal = Great Day!
Congratulations to Sarah Casebolt – She is the very first Pretty Little Celiac of the Month!!
When I read her story, I teared up and couldn’t believe her amazing strength during this journey.
~My Celiac story is interesting, back track to 1983 or so and I was a young one-3 years old. I had entered Kaiser Hospital in California because I was literally going to the bathroom 20-30 times a day, I looked well pregnant which is obviously odd for a 3 year old. I lived in the hospital off and on for almost a year and was living in the children’s ICU. It came up finally that I had Giardia which is a parasite, but that was odd as this is usually caught from streams, creeks, rivers, mountain areas, etc. Regardless I was released and told to live on, yet the symptoms where always present.
Fast forward nearly 30 years and here I am STILL dealing with issues, I am a working professional yet I cannot eat at work for fear of running to the restroom. I was in the Air Force for nearly 13 years and had the same fears, issues, and I was a flight medic so I was always hungry to say the least on those long flights transporting injured from Iraq and Germany.
Yet I digress, in 2005 I was tested for Celiac disease via the ever awful Colonoscopy and the Dr stated “He was not sure!”
Hmmm, so I went from Dr to Dr trying to find SOMETHING that resembled a diagnosis, during this time I began having major thyroid issues, an overactive thyroid caused me to be very skinny to the point of looking like death. Dr’s said the culprit was my thyroid, yet I did not really believe that, in fact I started doing research on my own because I felt I had no other way. I finally moved to Colorado Springs, now married we wanted to have a baby yet after 8 miscarriages at around the 12-16 week mark we sought help from an infertility specialist and became parents to beautiful girl/boy twins in 2009, then another daughter in 2010-yet despite these babies I always had a “tender” stomach and if I ate something wrong I was in for it.
In December 2011, they removed my Thyroid and said all my problems would disappear, how dumb I was to believe them! I took my thyroid replacement medication from there on out, once daily and during this time my husband who is still in the Air Force went to Korea and it would be a year long time away from his family, so I became a single mommy not near family and still sick, still could hardly eat. In late February of 2012 my wonderful neighbor who is a retired nurse came over, at this point I weighed maybe 100 pounds, she said “Sarah either you head to the ER or I take you.” I did not see what others saw until I allowed myself to see how much weight I lost, I was literally shutting down, she took me to the ER the next morning, demanding admission for me, my thyroid levels were 195 when “normal” is 4-9.
My organs began shutting down, I had oxygen on, the nurses and technicians were contemplating ICU, made me sign over rights to Kathy my neighbor until my husband or parents could get there. WOW! I was put in ICU, on pain medications because of the horrible stomach pains I live with daily, and was seen by a GI Dr who would be my savior at the end of this story. I was prepped for an EGD/Colonoscopy the next morning, sadly due to malabsorption due to lack of thyroid and GI issues so severe I was not able to absorb the conscious sedation so yes you guessed it, I was awake and mean WIDE AWAKE the entire procedure, talk about painful and awful. The next morning it was revealed I had Colangelous Colitis in my lower intestine, Gastro-paresthis in my upper intestine and severe malnutrition, not to mention my horrendous thyroid levels that could kill me if not taken care of.
I began a lengthy hospital stay, filled with TONS of steroids, and tests, you name it and I had it. At this point thank God my parents flew in to watch my children all under 3, and the Red Cross was working on getting my husband home to help. I went home several weeks later very gaunt, sick still, but thankfully the Air Force gave me my husband for 3 weeks. I was off work for nearly 2 months, returned in the end of May.
We have had a great summer with my kids and I, single parent duty still until 3 weeks ago symptoms returned, I had another EGD/Colonoscopy just this past Friday so we will see but even living a VERY STRICT Gluten free lifestyle I am sick again some how, I am literally at a loss. I am back to eating 2 meals a day if I can even keep that in and simply doing my best to be a single parent since my husband is still in Korea. My Dr on Friday was at a loss but said he will find the cause and help me, this GI group has been amazing and I am so blessed yet I still am having a tough time.
I am now at 150 pounds and for my 5’2 frame it is heavy, I am on steroids for inflammation and other types of steroidal medications to help me day to day until we know what is wrong. I do know this I have a VERY SEVERE case of Celiac disease, my children now eat what I eat, we all love organic fruits and veggies, and Gluten free products. This is my story, I am still living it but I find peace in your blog and others in knowing I am not alone in this journey that at times feels like a nightmare. I am so glad I could share my story with you.
Lately I’ve been feeling chained to living a gluten free lifestyle. It’s like a giant, shackled ball is on my ankle following me around everywhere. Even before I started blogging about Celiac and gluten free living, it has been all I think about. Any symptom I have, I wonder if I ate something with gluten. Anytime we go anywhere, I wonder if I can trust the place we are eating to not make me ill. I’m finding myself obsessed with food, obsessed with Celiac…
Not to mention, I feel like a huge burden to others. We just went to a cookout on Friday and they called to see what we wanted to eat. Aaron had to do the whole explanation thing of what I can eat, it’s not just wheat etc…
I ended up eating before we went over there and picking up a fruit bowl to take with some Woodchuck Cider Ale so I wouldn’t be tempted with snacks or be hungry the whole night.
I realize there are people with bigger problems than I have right now, but for me this is a huge hill I’m still learning to climb. My choices are so limited and I’m already a picky eater so it makes it even more difficult for me to find foods to enjoy. Between the gluten allergy, latex allergy and lactose intolerance problems – I’m struggling. Even more so than I ever have in the past and I think it’s because I’ve become more aware, more diligent of my problems. Specifically now that I’ve been diagnosed with these ailments and know what’s going on.
I’m one of those people that have to understand everything. My friend Janine always jokes with me (and gets annoyed I’m sure) because I ask her “why” all the time. I’m the kid that loved to learn. My grandfather used to teach me lessons on the drive to school and always made sure I was ahead of my grade with reading, writing and arithmetic! So, why can’t I figure this thing out??
Did you know that 3 out of 4 women suffer from disordered eating in one way or another? That was a study done in 2008…. Can you imagine what the statistics are now with social media growing so large – giving access to so much information to so many people?
75 percent of women report disordered eating behaviors or symptoms consistent with eating disorders; so three out of four have an unhealthy relationship with food or their bodies
67 percent of women (excluding those with actual eating disorders) are trying to lose weight
53 percent of dieters are already at a healthy weight and are still trying to lose weight
39 percent of women say concerns about what they eat or weigh interfere with their happiness
37 percent regularly skip meals to try to lose weight
27 percent would be “extremely upset” if they gained just five pounds
26 percent cut out entire food groups
16 percent have dieted on 1,000 calories a day or fewer
13 percent smoke to lose weight
12 percent often eat when they’re not hungry; 49 percent sometimes do
Everything I learned about nutrition for the past 4 years is wrong.
All the tools I used to lose weight, probably made me even more ill and could potentially cause numerous problems with me as I get older.
A Penn State University study found that women with controlled celiac disease, eating a gluten free diet – are still more likely to suffer from stress, disordered eating and depression.
As a fitness expert, the more I learn about wheat, gluten and GMO’s I question how I can still promote and recommend these items to my clients.
My hormones are so out of whack that I try to work my ass off – only to build NO lean muscle – just gain weight or stay the same. I never understood why I did everything “right” and it didn’t work. Well, my TSH levels were off the chart, I suffered from low testosterone levels and I consumed gluten at an extra-ordinary rate! No wonder I didn’t feel well despite being “healthy.”
You can imagine how frustrating this is for a fitness professional to try so hard and not get the body the others have. To obsess over what you are putting in your mouth, doing the right things, only to have your body rebel. It’s the same feeling to have a hair dresser with horrible hair or a foot model with warts!
Now my body is running the show and I have no control. I finally know what is wrong but there is still this part of me that still feels like this is temporary and I will be able to go back to eating regular foods anytime now.
I work about 10-12 hours/day 6-7 days per week and I don’t have time or want to learn new recipes or foods. I want things to be quick and simple. I’m fortunate to have a husband that doesn’t mind cooking, but often I feel guilty when he works the same as I do and then ends up cooking.
Today I realized I’ve developed a Disordered Eating habit. I’m only eating things that are quick and easy. I’m not getting enough protein and whole foods in my diet. I’m consuming too many snacky type foods. To put this in perspective and be totally honest – I ate a half a bag of Popcorners, 3 gluten free cookies, 2 gluten free soft pretzels, a gluten free cider ale and some Kefir smoothie with my vitamins. I’m self admitting here, hoping it will wake me up or you can give me some support to lift my head up and eat some meat!
There is a difference between happy and healthy or skinny. I’d much rather be happy and healthy but am struggling to put the pieces together.
I will figure this out….
Last night I had a great balanced meal! Salmon, green beans and purple jasmine rice!! I need to stay committed to these types of meals and eat them throughout the day instead of just dinner.
Am I crazy? Do you suffer from any of these? Leave me a comment and let me know!!