Gluten Poisoning Symptoms and Recovery

It’s 2 am on September 3rd, 2012 and I am wide awake with a horrific stomach ache. It started after my lunch out today at a local restaurant known for having a “gluten free” menu. My review is coming up this week but if you have celiac or severe gluten intolerance I would avoid it at all costs.

Gluten poisoning. What to say about gluten poisoning? It is awful. Just dreadful. Miserable.

Imagine having a stomach virus that gives you diarrhea along with a brick like feeling in your belly without being able to think or sleep. Eating gluten frequently causes a “brain fog” which is similar to having lack of focus. Primarily for me its because I just keep thinking about the horrible pain in my belly. It’s crippling.

The longer I go without gluten in my system, the worse the symptoms are when I do consume the little jerk. I can feel it in my joints. As I type this email, my fingers are throbbing. I can feel my heart beating in my stomach. My head pulsed all day from a low level headache and now I’m wide awake with insomnia from my stormy gut. My stomach is so bloated I look like I’m 4-5 months pregnant.

Gluten Poisoning. The bloated aftermath.

This is an allergy. My husband is allergic to tree nuts and swells up with hives and could die. My allergy is a slow painful death. Celiac causes tons of other problems for people including hypertension, hypothyroidism, heart complications, behavioral problems, sleeplessness and even cancer. For years I’ve lived with numerous under lying symptoms of celiac but because I ate it every day, my body was in a constant state of turmoil which apparently I just came to adjust to and go on with my life.

Gluten poisoning is different. Instead of a little stomach ache all the time, this is one big, giant, crippling stomach ache that lasts for 2-3 days.

Several weeks ago we went to a Cincinnati Bengals game and kept walking by the concessions with the fresh, hot soft pretzels. My total weakness. My favorite food. I could eat them every single day.

My favorite food. The soft pretzel.

I rationalized eating one that we usually go to 2-3 games per year and if I just let myself eat 1 pretzel at the games, I would satisfy my craving of foods I’ve been forced to deprive myself of for months now.

I ate the pretzel. It seemed like the most delicious pretzel I’ve ever consumed. I ate it in the most miniscule bites to make it last what seemed like forever. It was so good.

An hour later, I was fine.

2 hours later, I was fine.

This was exciting. I beat the system! I could enjoy a pretzel every once in a while and be fine.

Boy was I wrong…..

3 hours later we were about 10 minutes from home and I could feel it. My stomach started to gurgle. My head started to sweat and my heart started pounding. I know that feeling and we had to get home quick. I ran in the house from the driveway to use the restroom. Just like old times I thought to myself. Oh well, I can handle it. I lived with it for 15 years.

Little did I know what was going to happen that week. Friday night was the game. Saturday I felt like a freight train hit me. My fingers were totally swollen and my joints ached. I was exhausted and had a horrible stomach ache. Sunday was just as bad. Monday, Tuesday Wednesday – by FRIDAY I started to feel better. It took me a full week to feel back to normal. I ate fruit bars for almost the whole week. No appetite. Frequent restroom trips. It was just awful.

This was the first time I purposefully ate gluten since February. I’d gone 6 months without consuming a large amount of gluten. I’m sure I’ve had some in the mean time with cross contamination but nothing like this.

The only thing that seems to make my stomach feel better is the natural sierra mist. There is no amount of medicine, vitamins or foods that make your stomach feel better after being poisoned. You just have to stop eating gluten again and wait for your body to heal. Just take it one day at a time. If you have to rest, you have to rest. It’s very similar to having the flu. Your body will tell you when it is time to get back to the normal routine.

I’ve been reading all these things on the internet in blog posts and random other websites. They don’t work. Waiting it out and resting works. Drinking soothing tea might ease your stomach ache but it won’t heal your belly or the damage done to your intestines. Have you ever tried to sleep with a horrible stomach ache? It’s nearly impossible. When I eventually get to bed tonight, I will inevitably lay there tossing and turning until I have to get up in the morning.

Things will get better. I will get smarter about food choices and be more careful about going out to eat. It’s very difficult to trust that restaurants can fully protect you and understand the severity of gluten poisoning. It’s ultimately my responsibility to protect myself and in the future I’ll do a little more research before heading out to eat just because they have a gluten free menu. You live and you learn. The most mistakes I make, the more educated I become on this topic!

xo

The Pretty Little Celiac

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Comments

  1. It’s really too bad that you can’t enjoy a meal which you think is gluten-free without being worried about going through what you just described. It’s unfortunate that you still have to thoroughly research the menu so that you can be sure you aren’t eating something which makes you ill. Do you think you’ll let the restaurant management know about this, so that they’ll examine their menu more closely? I really hope this doesn’t happen again. Take care, and I hope this runs its course quickly.

    • Hi Cindy!
      Thanks for the comment and the well wishes. I am going to send them an email. The owner of the place we went typically has very safe food practices and I’ve never gotten ill at any of his other places. I think they should know about this event because they are gluten sensitive. Hopefully you enjoyed my blogs! I have so much more to say on Gluten and Celiac.

      Rebecca

      • When I go out to eat or go to a party I only eat what is suppose to be gluten free. Most people try to make gluten free foods for me, but mistakes are made. So to be safe I take two Gluten Cutters . You can find them at Walmart’s, Walgreens and CVS makes there own brand of Gluten Cutters. Gluten Cutters are made by a company called Healthy Digestives. They work for me. I am 58 years old and was diagnosed with celiac as a baby and then again 20 years ago after having my babies. Believe me it only takes crumbs to make me sick. My daughter is also celiac and finds that if she takes two Gluten Cutters before eating a meal of gluten she is fine. I am not brave enough to try that. I have been on a strict diet for 19 years now and it is wonderful to finally have something to keep me well so I can now enjoy going out to eat without worrie

  2. Rebecca,
    I just wanted to thank you for your blog. I just found out this past summer I have celiacs and have been battling with stomach pain my whole life. Reading your blog felt like I was reading my own life story. I’ve gone through the same things when it comes to my battle with gluten. I’ve also started to notice my stomach doesn’t seem to like lactose either. Did you get tested for that when you noticed? I have tried to completely cut gluten out but I’m still having stomach problems and I think it’s the lactose to blame. Your help is greatly appreciated!
    Thanks so much!
    Amy

    • Hi Amy-

      I’m so glad you found my blog because I wish I had a resource that I really liked when I was diagnosed. I’m continuing to add content each week so hopefully we can continue to share stories & I can be a support to you.

      The lactose thing is new since I really focused on eating gluten free. We cook a lot more at home and that allowed me to eliminate questionable food and food handling. I noticed it more which I’m finding is common. I’m actually in the middle of writing a blog post about my observations with lactose. My suggestion is to go totally gluten free, control what you are eating and then try different foods and see how you feel.

      I find that I actually like the lactaid milk and lactose free sour cream better than the original.

      Did you like my facebook page? I post a lot In there too!

      http://Www.facebook.com/prettylittleceliac

      Feel free to email me with anymore questions!

      Rebecca

  3. I have to say that its nice to see that someone else describes the same symptoms, the only difference for me is that on that three hour mark, I vomit off and on for about two hours, I can’t get up, I’m in the fetal position, and feel like I’m dying. It happened today, I ate at my fave restaurant, which I’ve never had issues with before, and was poisoned. :( After throwing up every single ounce of anything I have in me, my stomach ache will remain for a few more hours but the body aches are soooooo terrible! I feel like I got run over! I don’t cheat on purpose, in fact, I’ve been gluten free for probably six plus years, and I had almost forgotten (almost, mind you) how bad it feels to have gluten in my system. None of my friends or family have Celiac so they even though they see the outcome of accidental intake with me, they can’t understand the intense, horrible feelings that accompany it. As much as I wish no one suffers the same fate as me, it was nice to read your blog and see that someone does understand what it feels like. Thanks!

    • Hi Mandy-

      Thank so much for your reply. I struggle as well with people thinking it is just a “stomach ache” or that I can just flush it out of my system. I get crazy headaches and neck pain also and I’m noticing the symptoms getting stronger the longer I go without gluten. I’ve also noticed that some things cause a greater reaction than others and I’m trying to pinpoint what that is so I can know the main triggers. I started the blog for that exact reason, people like us that other people think are over reacting about the symptoms. They don’t realize how serious it really is to be “glutened.”

      Thanks for stopping by and I hope we can share other stories as well. If you have any great ones, don’t forget to enter my contest!

      Rebecca

  4. Wow, you’re brave to eat that pretzel! I haven’t been able to bring myself to eat anything like that. Too scary. Hope you’re feeling better!

  5. I just had my first experience with this! I have no idea what I accidentally ate, because I’m extremely careful. But all these symptoms that had gone away after going gluten-free, suddenly came back with a vengeance. Not just the stomach pain, but eczema, itchiness, irritability, heartburn, headache, feeling mentally “foggy,” … It’s so much worse when you go without it for a while and then ingest it. You’re right, I think our bodies do adjust to it – kind of like alcoholics who are drinking a lot and often – they develop a tolerance and can drink large quantities. But if they cut it out completely and then have it again, it will take much smaller amounts to reach the same effects.

  6. AHHH! I feel you so much! It is the worst thing in the whole world, one time I ate pizza from a local pizza place. The manager swore it was gluten free…well my stomach told me it was not within about 10 mins. Worst feeling ever and for me it lasts for weeks. *hugs*

  7. Sarah casebolt says:

    I feel the same way and have all weekend.
    I ate something with gluten but no idea what.
    Tomorrow I have to work, be a single mom as always and deal as well as dig deep. Sitting here near tears. I with you…tummy aches and all. Feel better friend.

  8. I break out in blisters on my face, and my arms,I hate this Celiac so bad…thank you for this website you have brought to us

  9. Thanks for sharing your story. My husband is allergic to gluten, soy, and eggs – and has to be on a candida-free diet, which is basically no starch. It’s really harsh. He didn’t have symptoms like this but he had chronic fatigue and arthritis flare-ups. He’s been on this crazy diet for about 6 weeks now and he’s still not feeling better, but his doctor said that it could take up to 6 months to feel better. It’s crazy how closely tied our stomachs are to the rest of our body.

  10. Rebecca
    Thanks for all your post. I finally found someone who seems to be as sensitive as I am. It usually takes me about a week to settle back down and I blow up to about 7 months preggers! lol I am even starting to have problems with preservatives in meats bought at the grocery store. It took over 6 yrs for them to figure out what was wrong with me, and many many medical test and of course as much money as they could get from me since I do not have insurance. I had gotten so bad that before I was even 40 yrs old a neurologist told me to quit my job and go file for disability that I was permanently handicapped and it would only get worse with time. When told there was no sign of a reason for nerve damage, but mind you I was told I had suffered 2 small strokes; hello that I didn’t even know about, that it was all a nutritional thing, I left his office went home and ordered a Bow Flex machine and within 2 months was off the cane. I still can’t seem to get past the 100 lb mark which is sad since I am 5’9″ tall. My thought was that if I work out the body would demand the nutrition it needed to survive and for a little bit that worked. But constant workouts are not something my body can take, with the joint stiffness and the osteoporosis that at age 42, they tell me my bones are that of a 70 yr old as well as my intestines, I have had to cut back on the workouts.
    I have found my biggest problem is finding good things to eat since most of my life I ate things out of a bag served over a counter, a box, or a can. So anything you find especially appealing please feel free to share with those of us always looking for something good GOOD being the key word there and that doesn’t cost a small fortune. Which I don’t know if you have noticed but gluten free is extremely expensive. Or maybe I should say the gluten free baked goods are expensive. And the better they taste the more expensive they are. It’s like a big conspiracy to keep the american public eating foods that we have manufactured to turn on and destroy our bodies. I am trying right now to convince myself to buy a loaf of paleo coconut bread that runs $11 a loaf! Anyway don’t let me get started on that end of things. I just wanted to say.
    Thanks for your sharing it is VERY helpful and I look forward to reading more.

    • Welcome Pam! I feel your pain (literally & figuratively). Part of my problem is that I hate cooking & I don’t want to buy a ton of ingredients – which most of these gluten free cook books require! I’m eating pretty plain these days….

  11. I have been glutened at restaurants that claim to be gluten friendly too. The sad part about it is when I’m home sick all week I wish I had eaten Chick Fil A or my mom’s lasagna instead. At least I would have enjoyed being glutened! Instead I had something “gluten free” that tasted like cardboard!

  12. It’s comforting to hear I’m not the only one who “tests” my tummy on occasion. I will be doing really well and then go to a dinner at friends or one of my grandkids birthday parties and think “I’ve been really good so one little piece of cake or cookie won’t kill me”. And like you, within 6-8 hours I am stuck in the bathroom with horrific stomach cramps and diarrea. It will last for days. I use to try to blame it on my arthritis meds or something else. Now my husband will say ” don’t do it, you will be sorry”. He is my voice of reason! I will also get terrible migrains and my arthritis will flair up and I just want to stay in bed and pull the covers over my head for days! Then I beat myself up for being soooo stupid. The funny thing is, I was tested for Celiac disease and the results were “inconclusive”. Then why does this happen every time wheat touches my stomach? I also sometimes have problems with dairy products. Not always but sometimes it causes the same symptoms as wheat. I have decided that no matter what the tests show, my body knows best! While staying off wheat and dairy won’t cure my degenerative arthritis or nasal allergies, it certainly helps my symptoms and allows me to enjoy playing with my grandkids, riding my horses, walking my dogs and waking up to a good day. Thank you so much for your page!

  13. Hi Kim!

    Thanks for stopping by! I’m glad you are enjoying my blog and it’s comforting for me as well to know I’m not the only one that does this!!

    Rebecca

  14. I am extremely sad today as my diagnosed Celiac 5 year old granddaughter has just spent the last 4 days with extreme vomiting within 6 hours (10 times the first 24 hours) and diarrhea, and complete lifelessness from Reese Valentine heart candy that I bought for her during a Valentine celebration at my house. Reese has been my go-to candy for her for the last 4 years since she was diagnosed with Celiac disease at 22 months old. I found out right away that Reese peanut butter cups were safe and Gluten free and I have been so comfortable with that fact. I have always bought the Easter eggs and Christmas candy for her too. There is nothing on “this” package label that states “contains wheat/wheat flour.” After researching what went wrong, I read Hershey online that the seasonal shapes are not guaranteed gluten free. I can’t believe this. Why would they ever make some Reese cups gluten free and then “fool” us by not making all of them gluten free? I feel totally mislead. I believe Hershey would die if they saw my little 5 year old the past four days. Her little body has been extremely lifeless, and she has slept non stop except for when she is vomiting. She only has sipped a little water and has not eaten a thing for 4 days. She only weighed 45 lbs. and lost 5 lbs. this week. After reading some other blogs, I can see she is an extreme case. She was completely poisoned. Not to mention that parents had to take off work all these days. I have been communicating with Hershey to change this.
    Sincerely,
    Kathy Mc

    • I am so sorry to hear this. It breaks my heart! This story is the perfect one (unfortunately) for advocacy on proper labeling of gluten on foods in the united states. Canada is there, why aren’t we?

  15. Hi guys! I have struggled with “stomach issues” my entire life but most severely since the birth of my oldest daughter (11). I went to one GI after another with no answers. More recently I have been suffering from chronic fatigue and extreme body and joint pain. plus i feel “sick” most of the time. I was diagnosed with fibromyalgia and my dr referred me to a GI bc my vitamin levels are staying extremely low. I am scheduled for a colonoscopy, endoscopy bloodwork, and biopsy. She mentioned celiacs. I’m a skeptic with doctors bc of the hard time I have had over the last decade with them never really finding answers but treating me to death. I refuse to believe at 31 everything in my body is completely failing me. It has to all be linked somehow. I’m really scared that i will be positive for celiacs but test negative and spend another decade with my mystery diagnosis. Any suggestions on what I should look for with the testing or what questions to ask?

    • Kim did you see my post about questions to ask your doctor at your first appointment? I am also 31 and had my body fall apart which ended up giving me the celiac diagnosis. Just don’t stop eating gluten until after your appointment. They won’t be able to adequately test for the problems if you stop eating it before your tests. Then if you are going gluten-free, you have to stop eating it completely or you will never get better. We are a great little celiac community here and even just gluten-free. We are all here to support you. I’m on twitter and facebook if you ever need us!

  16. Your story has to be the worst news of my life!! I’ve had coeliac for 18 months and not touched anything but recently I’m really craving a jammy donut and thought one wont hurt me apart from a bad tummy but it’ll be wirth it. How wrong am I, it looks like ill have to avoid it now. I hope your happy!!!! Seriously though I’m pleased I read this. Thank you for been a human guinea pig.

    John

  17. Gretchen says:

    I am so happy I stumbled across this blog! Im 16 years old and all the food teenagers want is filled with gluten! I have to admit I cheat a lot… And I sure do pay for it. My stomach hurts for an entire week and theres nothing you can do but “wait it out”… Story of us Celiac peoples lives!! Ive been gluten free for 6 months now and i still have horrible abdominal pain. Is that normal?

    Thanks, Gretchen

  18. I have celiac and have been on a gluten free diet for about 20 years. I can’t count the times that I have been poisoned by cross contamination and human error. It is unfortunate that alls you can do is ride it out and hope that feeling like death doesn’t last long . But I have recently stumbled apron a product called GULTEN CUTTER you can find it at Walmart’s and Walgreens. I take it just before I eat whenever I think there maybe a possibility of being poisoned with gluten. My daughter takes it and can eat gluten and not get sick , I have not been that brave and have not tried taken it and purposely eaten gluten. It is a natural and breaks down the gluten in the upper intestine before it goes to the lower intestine and dose damage. So you may what to give it a try before your next party or restaurant experience.
    Betsy

  19. I came across your blog after having reaction to food served at a restaurant this weekend. My story, at the end of May 2013 I had a terrible stomach flu. It lasted 10 days. It was the worst I’ve ever felt and I remember at the time, this didn’t feel normal for me. I was in the hospital 3 times in a two week period due to extreme vomiting and dehydration and blood work that showed I was fighting a terrible infection. Then I was in ER at least once a week until the end of June when I was hospitalized for 5 days because I would feel terrible for 12 hours – vomiting, noise and light sensitive, foggy brained, etc – everytime I needed to have a BM that would never happen. Then like a light switch turning on, I felt fine for several hours and the cycle would start again. After 5 days, several tests and seeing a GI specialist in the hospital, I was told to go home as I’d get better nutrition and told I had developed IBS and a possible food allergy from the severe flu I had.

    I saw a Naturopath and he had me go on an Elimination Diet, which was the hardest thing I have ever done. In my 39 years, I’ve never had to read labels or watch what I eat – except when I had my gallbladder removed 2 years ago. Anyways, long story short, I cheated on the elimination diet and narrowed it down to having intense vomiting and dehydration episodes and feeling like a brick was in my stomach for several hours about 10 hours after eating food that had gluten, starch or alcohal in it. I would end up in the hospital to be rehydrated and to get IV anti-nausea drugs to help me. This weekend I got sick after eating at a restaurant and narrowed it down to a gluten or starch that did it, though the restaurant denied giving me gluten (they did it was in the chicken broth in my rice flavouring). I believe I have a gluten allergy and am very sensitive to cross contamination because the gluten free products I am eating now do contain some starches and I haven’t had issues.

    This has been such a difficult time for me. I have lost over 20 pounds since June 2013 – the first 15 pounds coming off in 3 weeks, the rest by cutting gluten and starchy foods out of my diet. I am reading online and I rarely see people who have episodes like mine. Does anyone else out there have vomiting episodes after consuming gluten and if so, how long after eating? (mine is about 10 hours after consuming food) I don’t have stomach pain but I do have a stomach burning and I get adrenaline surges and frequent urination my stomach feels like a brick and clothing resting on it is very uncomfortable and i feel a lot of pressure. Am I alone in these symptoms? Are these common symptoms for celiacs?

  20. Hey Rebecca,

    I so appreciate your blog. I have always had digestive issues, but in 2006 i started getting severe hives, that.no one could figure out the trigger. Recently it started on my palms, so i decided to find out what i was allergic to. I went gluten free & dairy free for like 4 days. Noticed nothing wad changing and went on.vacation, and ate whatever i wanted. Oh boy was i gasy, bloated, gurgling gut, severe intergestion, burping. On the 12hr drive home, i waslike upchuck vomiting. Next i was in the hospital. I went gluten free again, but i dont understand its a week and i fluctuate from feeling better to completely slammed with bid E.T.

    • Sorry my phone dislikes me as much as my gut. lol. So i im getting slammed with stomach (intergestion) gurgling belly, the Big D, randomly on my very stricked gf diet. I havent had a normal bm in i dont know how long. Is it normal to suffer for a period of time after you go gluten free. I thought you’re supposed to feel 10x better. Im miserable!!!! Thank you for puting uourself out

      • Ahaha just rediculous… Thank you for putting yourself out there to help us figure our way through the stomach cramps

        Lets get well,
        Amanda

        • It can take awhile (even months) to feel better. Many times after you first go gluten free you don’t realize how many items have gluten hidden in them. Check things like gum, mints, soups ect. I couldn’t figure out why my stomach would bloat up randomly until I found out the gum I was chewing contained it. Another thing you may want to think about is going on a probiotic or taking something like Papaya enzymes after you eat. Your body won’t be able to break down food very well because of the damage to your gut.

  21. Water, Water, Water –
    I have negative reactions to MSG and aspartame as well as gluten.
    When I feel that I have been exposed to one of these, I drink lots of water to help process the bad stuff through my system faster.

  22. So happy to find this info. The swollen joints and head fog really hit home for me. Also, my gut feels like it’s trying to process nails and screws. I’ve been in a steady state of “attack” since Thanksgiving. It’s time to start healing. Thank you for the info.

  23. I want to say, since I was 12 years old I have had stomach issues. Severe constipation, stomach pains, and occasional diarrhea with esophageal spasms- horrible. I have lived with debilitating stomach issues for years being blown over and just being told I had IBS and acid reflux disease. I am no doctor, but I KNEW what I was dealing with was more than IBS, and I was forced to live in agony every day (who really takes kids seriously- it is sad). It wasn’t until after I had my son two years ago that my symptoms flip-flopped. I started having diarrhea every day, then multiple times a day, and then the barfing started. I was literally living in the bathroom. I had to make an appt with the gastroenterologist, and while I waited for my appt date, I decided to take a hold of my own health. I did what we are told not to do, and googled away. It had to be Celiac’s or Crohn’s and I took charge and started with cutting out gluten and educating myself more on nutrition. I didn’t need the biopsy, colonoscopy, or blood work to come back from the doctor’s office because my stomach was 75% better by the time it was confirmed. I am a very careful Celiac, and I rarely eat anything out, and usually when I do try to take a chance (even at places who offer ‘gluten-free’), I usually will pay for it. It isn’t worth being glued to the toilet with my head in a trash can. My violent poisoning will onset anywhere from an hour to 5 hours from ingesting toxic gluten. I ate a contaminated salad that I bought three days ago and I am still recovering from it. I just hope that everyone here who has spoken up and shared their stories will help someone. More and more research is showing that cases of Celiac’s Disease ranges from constipation to severe diarrhea and vomiting. Be your own advocate… no one should have to suffer. Thanks, Pretty Little Celiac, for starting this… awareness is key. Feel better everyone!

  24. I like how you break down the time line for the pretzel. I usually know in two hours myself. One night at a friend’s house, I poured myself a glass of wine. It was dark with a foam on top. I took a sip as if in a trance. Just as I went for the second sip, the host said; “you know that’s beer right?” Those damn Trappist are disguising beer in wine bottles. Who knew? It was so good. The denial was so strong. Later in the evening, I thought; ‘gee, I’m full.’ It was the bloat. Ugh, the bloat! I woke up in the middle of the night in abdominal pain. Only until after being gluten free, did I link my sleeplessness to my diet after waking up in abdominal pain or excessive farting.

    I’ve been gluten free for six months. My IGA Panel was normal, but my primary doctor recommended going gluten free to see how I felt. I’ve had IBS, reflux and Eczema for years. All went away on a GF diet, until I started eating out again. “Gluten Free” isn’t gluten free. I was still skeptical though. So I went ahead to see a GI doctor and whatever I said, he felt warranted an endoscopy, BUT he wants me to liberalize the gluten. To be honest, I’m a little scared. It makes me feel like crap. Also, I cheated this weekend at a holiday party cuz I didn’t want to be the glutard eating salad and rice. Welcome back all my old GI symptoms. Today I was light headed. Is that the brain fog??? I felt out of it all day, but almost four days later. I’m applying for grad school and taking the GRE next month, and I can’t afford to be out of it. Recommendations or thoughts.

  25. I am not diagnosed celiac but I am sensitive and irritated by gluten, among other things. It’s hard for me to not cheat because I am not always affected at first. One too many cheats and I am right there with you on intense stomach aches, bloating, immediate runny nose and swollen sinuses, brain fog, diarrhea, flaky skin rash. However I can tolerate things like a hand full of cookies or a bagel here and there on a good day. So take this with a grain of salt.

    Have you tried eating paleo? It eliminates all the gluten-full baddies without making me feel like I’m deprived, or like I’m going to be poisoned. For me, I take it further and avoid nuts, eggs, and seeds. It changed the way I look at food. I eat meats, fruits, veggies, and lots of good fats. I even make my own spices from stuff in the produce aisle at the grocery store because I know it’s safe! It’s so easy. And what person wouldn’t drool over a meal of juicy steak, carefully chosen bacon, sweet potato, and broccoli?

    When I do mess up and cheat (pretzels give me the worst stomach ache, hands down, after the first bite) I reach for raw parsley or cilantro. Something about it halts the ache immediately. If I intentionally cheat I eat an entire bunch beforehand. This may not help if you’ve got it bad but I know how it feels to be desperate, and worst case it won’t do anything but best case may work.

    I don’t pretend to have it as bad as some people, but I can’t carry on glutening myself. My last episode led me to your site in the hopes of motivating myself to not cheat. It’s just hard sometimes to be the odd one out. I felt compelled to comment – I hope my little tricks can help someone.

  26. Can I just say DITTO to all of the above…Last month I had 1 slice of Pizza from NYC and was in so much pain for a week…I eventually went to the ER and my gallbladder had to be removed…Since then I have been totally gluten free…but it’s still so confusing because I can eat Italian bread from the bakery with no problems at all and my local pizza place has thin pizza that doesn’t bother me…I chickened out on the upper endoscopy 5 years ago and just decided to cut down on gluten but I really need to get tested…I had my appendix removed about 20 years ago then my gallbladder recently and I’m thinking it’s all related to gluten and I’m so afraid of what’s next!! It does so much damage to our bodies!! On a positive note, the joint aches and swelling has gone down and that foggy feeling is GONE! Like a miracle! Almost like I couldn’t wake up and now my brain is so clear and alert!!

  27. I have a 3 month old that seems to have a reaction when I eat dairy and gluten. I also have Celiac disease. I have been off gluten for 1.5 years. But last week I rationalized that I must not have it any more so I ate some breaded chicken. The next day my son had mucus stools, congestion, projectile vomiting, and bloating. No more vomiting after two days but a low grade fever, diarrhea, and a rash like mine. I had bloating, stomach cramps, hair falling out, my gluten rash on arm, and a week later I feel better but now have diarrhea today. Could it be a virus because that would seem like a big coincidence? Have you ever had those symptoms?

  28. Go to walmarts or walgreens and buy Gluten Cutters and take them when you go out to eat or anywhere you could accidentally be glutened it is a great way to keep safe.

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