25 Things I’ve Learned about Celiac Disease
It’s been an incredible life long journey for me (and many of you) until I finally got the answers I needed for all my medical problems. It seems as if it were yesterday that I was sitting in a doctor’s office, waiting to be seen, only to leave disappointed and without any hope or answers for what was wrong.
Another doctor, another prescription and still no relief…
But the last few weeks, I’ve had some time to reflect and really think about what having celiac disease means to me and some of the major things I’ve learned over the last 18 months through my own personal experiences and the last 10 months as a blogger. If you have things you learned about gluten-free living or celiac disease, please feel free to post them in the comments so other readers know they aren’t alone!
- My celiac disease is not your celiac disease. I can’t emphasize this one enough! We all have different triggers and ailments so it’s incredibly important to pay attention to your own body versus what you hear from me or others on forums and websites.
- Celiac comes with other problems. Endometriosis, thyroid problems, arthritis and vitamin deficiencies for me!
- Vitamin & Nutrient levels should be tested on a regular basis to ensure you are supplementing properly to nourish your body with what’s missing.
- Gluten will make you feel crazy, act crazy, think you’re crazy and make you paranoid. It consumes you life and there are times when I just have to stop and think… at least it’s managed with food.
- It seems to be the only disease people don’t know enough about to tell me how to live my life. Now, gluten-free is another story but celiac disease usually doesn’t get too many unsolicited comments or advice from others.
- You have to be incredibly educated about celiac disease, living gluten-free and your body to be safe as much as possible.
- It’s essential to learn how to plan accordingly when traveling, dining out or anything out of the norm to prevent you from being stuck.
- A gluten-free emergency supply kit is a necessity not an idea.
- Poop can tell you so much about your eating habits and health of your body!
- I still learn about gluten in things and are surprised by it – tea bags are my most recent discovery!
- The gluten-free and celiac community is amazing and I am honored to be a part of it!
- I’ve come to realize that packaged gluten-free food is my worst enemy. For my health & my waist line – real foods is where it’s at!
- Celiac gave me the opportunity to see who my real friends are and learn the ones who care enough about me to always make me feel safe.
- Celiac and fitness is an interesting concept. I’m excited to come out with my program late summer!
- I’ve learned to accept the days when my body won’t cooperate and stopped beating myself up about feeling tired, having a headache or achy joints.
- Being curvy and healthy is more important than being lean and unhappy.
- Living gluten-free doesn’t have to be more expensive – you just have to plan better and eat clean to keep the budget tight.
- I’ve learned to look at life as a new adventure, instead of letting it stress me out every day.
- My family shouldn’t be burdened by my celiac disease, so I try to bring my own foods to events just to make sure I’m safe and not starving.
- Airports are the worst for living gluten-free and with celiac.
- Writing and blogging helps keep me sane and warms my heart when I’m able to help you too.
- There are no true gluten-free substitutions. Gluten free bread is not soft sourdough bread and it never will be. Gluten-free Oreos are not the ones I’ve learned to love over my lifetime an none can duplicate it either. I’m done trying to find substitutes and instead I’m learning to love new things instead.
- I’m proud to take charge of my health and not take no for an answer. I refused to accept that I didn’t have anything wrong with me and I was correct.
- I love my husband more now than ever. He has been the most amazing and supportive person through this and I certainly hit the husband lotto.
- I love my body more now than ever. All of it. All the problems. All the wonderful things people take for granted, I’ve learned to love and enjoy.