Getting Started with Celiac Disease: Podcast

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On The Air with Pretty Little Celiac Getting Started with Celiac Disease

My newest podcast from this week is up and ready to go! I cover the basics of getting started with celiac disease. Basically all the things you need to know after you leave the doctor’s office.

Were you recently diagnosed with celiac disease? Are you struggling with what to do after you left the doctor’s office?

This podcast is for you.

I cover what to expect after your diagnosis including:

1. Emotions you will feel

2. Tips to get through everything

3. A get started guide on living gluten-free

4. Major changes in your life that need to happen for you to be successful

Please leave feedback! I’d love to hear it. 

Coping with Celiac Disease: A Therapist’s Perspective (Podcast)

Coping with Celiac Disease: A Therapist’s Perspective

When I was first diagnosed with this disease, I didn’t understand it and struggled to figure it out. Some of you are there now and are looking for help or some of you think you have it figured out but maybe just need to hear something new. I invited Jummy Olawale on my show to talk about the most common struggles associated with celiac disease ( besides the food!).

I’m so glad I decided to do this. Her insight is poignant and dynamic. She really gives inspiration and hope along with tips and suggestions for dealing with this disease. She’s doesn’t have celiac and isn’t a specialist in the disease but really can provide some help for those of us needing help. If you feel out of control or like you lost your footing, this is the perfect place to start.

Here’s a little snippet of what we discuss on the show:

1. What are some coping skills to use when someone goes through a major life change like celiac disease? When everything in your life as you know it, changes in an instant? How do you handle the sense of feeling alone and like a hypochondriac because no one else understands the complexity or the seriousness of the disease?
2. What are some coping skills for handling all these emotions? Sometimes we can have other life issues going on and this is just a huge burden on top of the lemons life throws at us. Especially when you have a bad day and just want to go home, order a pizza and lay around all night.
3. What’s the best way to explain a disease like this to husbands, family, kids and friends? How do you get them on board with helping you instead of constantly minimizing the disease and asking you to just “try a bite because it won’t kill you.”
4. How do you handle the disappointment when family and friends (or your spouse) doesn’t sympathize and isn’t as supportive as you think they should?
5. Marital problems – Handling a non-supportive spouse – what do you do? When your spouse is the only one that understands, how do you find other outlets to cope instead of stressing them all the time.
6. Changing you mindset of food being pleasurable and instead of thinking about it as fuel. People get so upset that they have to eliminate all the things they love that are poisoning them. When they get poisoned, they beat themselves up and get mad at their bodies for betraying them.

On The Air with Pretty Little Celiac is also on iTunes! You can just search “Pretty Little Celiac” and subscribe to it and all the episodes will feed right into your player!

Want to know more about Jummy Olawale?

Jummy Olawale is a dynamic speaker, life coach, Licensed Professional Counselor, Pastoral Counselor and Licensed Chemical Dependency Counselor with extensive international and multicultural life experience and education.
Biography

Jummy was born in Nigeria, Western Africa where she lived and attended elementary and secondary school. She migrated to London, England where she completed her High school and college education. She earned her Bachelor of Arts (BA.) degree in Psychology and Natural Science from Canterbury Christ Church University College, Kent. After getting married, she migrated to the U.S. where she now lives with her husband and their two children. Jummy earned her Masters of Arts (MA.) degree in Counseling Ministries from Methodist Theological School in Ohio.

Jummy utilizes narrative therapy, cognitive behavior therapy and motivational interviewing approaches. She specializes in individual, couples, and marriage therapy, multicultural counseling, parenting support, career coaching and life coaching.

 

May is Celiac Awareness Month! Get your Gear Here!

Celiac Awareness Shop
Celiac Awareness Shop

May is Celiac Awareness Month!!

This is my first celiac awareness month as a blogger and I’ve got to say this is an exciting month for me. I’m extremely busy, have a ton of projects going and am just loving being part of the gluten-free and celiac community.

I am thrilled to have some amazing products in my shop for you to show your #PLCpride! Did you already order something and love it? Make sure you post it on Facebook and Twitter to show your celiac pride.

I like to think of awareness merchandise as conversation starters! This is the perfect opportunity to educate and spread awareness when you wear the green.

So, what do I have my store? Limited quantities of headbands and lots of bracelets.

Shipping is FREE over $15 and there is a flat rate to Canada.

I’m randomly selecting people who purchase things this month to get a bonus gift with their package – will it be you?

 

On The Air with Pretty Little Celiac

Married to Celiac: Episode 1

Well, BlogTalkRadio had a major outage Thursday night and I wasn’t able to tape my show live with Aaron. We did however record it on our own and upload it to the website. So, check out our first episode together.

We touch base on how our eating habits changed over the last 8 years. I find out if Aaron ever thought I was a hypochondriac. We discuss tips and advice for people dating and how to explain your condition. Find out how my diagnosis changed our relationship and our life. We also offer relationship advice for how to get your partner on board with celiac.

Don’t miss our candid show!

Gluten-Free but Still Getting Sick?

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Are you eating gluten-free but finding yourself still getting sick?

Were you diagnosed with celiac disease but struggling to feel better and get rid of the symptoms?

Well, this is the post for you!

Depending on where you are in your recovery, you will continue to struggle for months even up to 1-2 years after your diagnosis for a variety of different reasons. These are 5 reasons you might still get sick after removing gluten from your diet:

  • You are probably still eating or using products containing gluten. Not by a fault of yours (or maybe so) but you are still getting used to eating gluten-free. This is a process. You can’t cut gluten like you would peanuts so it is much more difficult to avoid in the beginning. Don’t beat yourself up over it! Each time you get sick is a new learning experience. Even people who have been gluten-free for years struggle with hidden gluten at times. Maltodextrin seems to be the ingredient that I miss on labels all the time!
  • Your body is healing. Remember you likely have gone many years with undiagnosed problems associated with gluten and so just by eliminating it is the first part, you need to take the time to allow your body to get back to normal. It has to heal itself and adjust to a whole new (healthy) way of living. You might need to have your blood levels checked to be sure your deficiencies are being covered with supplements.
  • There are other things you are reacting to that once you eliminate gluten you will realize, like lactose. It is very common for celiac to hide other food intolerance or allergies so be careful when blaming getting sick on gluten, it could in fact come from something else.
  • You could have another bowel disease-causing the distress. If eating a dedicate gluten-free diet doesn’t help your stomach symptoms, then you definitely should go back to the doctor and be tested for other diseases like colitis, Chron’s or other bowel disorders.
  • You could have another auto-immune disease-causing problems. For instance, I was suffering from Hashimoto’s hypothyroidism, rheumatoid arthritis and endometriosis. It took a whole year to figure out all of those things and once they were all dealt with, I started to feel like a whole new person.

If you are eating a dedicated gluten-free diet and your symptoms are not improving, you should seek a doctor’s opinion as to why you aren’t getting better. Unfortunately, there is a small percentage of people who do not get better using a gluten-free lifestyle so it is imperative you seek medical attention.

Another concern with gluten-free is that you have to go cold turkey. Literally, there is no weaning process for gluten removal. You must stop eating it because you will never get better if you do not completely eliminate it from your diet. I’ve written another popular post about why cheating on celiac is a horrible idea, so if you are trying to eat just a little bit of gluten – it’s time to stop.

Gluten is not like lactose. I’m lactose intolerant and can handle a small amount. If you have celiac disease, you can not handle ANY amount of gluten nor should you try to test your body. Just because you don’t physically react to a small amount that you can tell, your body on the inside is in turmoil creating a breeding ground for malignant diseases like cancer!

Finding out you have to eat gluten-free is not the end of the world. There are lots of supportive groups and resources out there for you! If you want to check out our Facebook group – you are more than welcome to join us! It’s primarily women and we are a non spam, non soliciting, self-hosting support group on Facebook.

Comments

  1.  Liz says:

    What a great post! For years doctors were blaming my symptoms on (first I was called a hypochondriac) the genetic condition I have, Ehlers-Danlos Syndrome – Hypermobility Type. Only when I had sever vitamin deficiencies did they even consider celiac again and that someone could have more than one thing going on!

    Thanks for posting!
    Liz recently posted…cinnamon St. Patrick’s DayMy Profile

     

    •  Rebecca says:

      I swear we could all write a huge book on the misdiagnosis of celiac disease. Everyone has such different stories with all the same theme. At least you have it sorted out now but I’m sure you would rather of had it many years ago.

       

  2.  Princess Shimari says:

    Hi, Can anyone explain the relationship between endometriosis and Gluten Intolerance. This is the first time that I have heard of an association and I am eager to find out.
    Princess Shimari recently posted…CONSULTATIVE MARKETING My perspective.

     

    •  Rebecca says:

      There are very limited studies that link the two but women with celiac disease have a 25% chance of having endometriosis. They all seem to link together especially the infertility concerns.

       

  3.  Cathy says:

    Rebecca, I’m so thankful to have found your blog today, because I am at my wit’s end! I was diagnosed a year ago with celiac – with a bonus diagnosis of collagenous colitis, which I thought would go away as soon as I started eating GF. Nope. It did for a while, but this is the 2nd time in a year that I’ve been able to eat basically nothing for weeks in a row. I’m sick, sick, sick…and SICK of it! So, I’m just glad you’re here with suggestions like looking into lactose intolerance (love milk in my coffee and think yogurt is good for its probiotics) or vitamin/mineral deficiencies. Thank you!! If nothing else, you are a morale-booster that will hold me over till I can figure this all out. : )

     

  4.  Jamie R says:

    Hey Rebecca,

    Thank you for the article. It feels good to know that you are not alone in this battle. That other people have conquered what seems very difficult, and managed to lead healthy lives!

    I don’t want to rant too long, but I feel it is important to get a little bit of detail in to be able to really see the situation.

    I have been ill for a long time (diagnosed at an age of 2, but not being able to clue together the physical and mental problems it brought with it until age of 20+). Can go as far to say I had gluten ataxia (neurological issues: slurred speech, muscle weakness, cognitive difficulties etc), constant anxiety/depression, lots of pain throughout the body, sleepless nights / insomnia etc caused by this and the list goes on.

    I’m now 26 and I’ve been on a strict gluten free diet since sept 2012. I’ve gradually gotten better, started working out and felt my health slowly creep back up. Though as things were progressing nicely I’ve now hit a road block and it feels as if the horse is starting to run backwards, upside down, across the ceiling. I’m confused. I eat “paleo” clean fish, chicken, tuna, eggs, gluten free oats (not sure about this one) veggies, rice and mostly self prepped except tikka marsala sauce which is “gluten-free” (yet again, not sure if it is safe). Also drink some milk, but have taken it on off the diet. Fruit/berries smoothies and tried hemp protein for a while (again, not sure… so I dropped it) . Potatoes gives me the worst stomach pains and so does certain foods. I take fish oil, gluten free vitamin tablets. Working out 2-3 times a week… Was seeing good weight and muscle gains, but now I’m feeling weaker and weaker for every day. Also have a lot of normal allergies, and I’m quite certain they cause reactions throughout my body (such as peanuts) and I eliminated the ones that I could tell wrecked havoc. I’m now at the point where I’m curious what to do. Head back to the hospital for further examination? Play it out and try to eliminate once again?

    So I was wondering if you have any tips on how to approach this as it seems you have gone through the same thing. Would really love your thoughts and any help is greatly appreciated!

    Kind regards,
    Jamie

 

 

Celiac Disease and the Phoenix: Have you Reinvented Yourself Yet?

Celiac Disease
Celiac Disease

It’s funny how symbols we find important show up in every part of our life. For me, the Phoenix is a very important and symbolic thing because it is all about being reborn and reinventing yourself. It is a reminder that most things aren’t finite and we can at any time change our lives to something completely different. Accepting the consequences of those changes are often what people find discouraging about major decisions and avoid the opportunity to explore life to its fullest.

These changes can be something as simple as quitting your job, moving to somewhere different or as challenging as leaving an unhappy marriage or divorcing negative friends in your life. But regardless, these options are choices we make because they might better our lives.

It’s funny because when I opened Bexa Body Fitness, I wanted our logo to represent being reborn. I wanted it to be about finding that inner fire inside of you to drive you to where you want to go without looking back. Now I need to figure out how to incorporate that same theme into my Pretty Little Celiac world.

There are changes in our life that we don’t have the option of choosing like celiac disease, cancer, other physical ailments or death. It’s how people handle these horrific life events that make us all very different. For me, celiac disease was a heart breaking and devastating life event but not as terrible as watching my uncle suffer from pancreatic cancer  or sitting at the Cleveland Clinic on Christmas waiting for my grandfather to come out of surgery. There are people that fight this diagnosis and continue to eat gluten knowing it could cause them the more serious ailments like cancer but that’s their choice. They are choosing to ignore the easiest disease to take care of because you only need food.

Celiac disease is something we should be grateful for when caught early enough. All we have to do to cure celiac disease is eat gluten free. This gives us the ultimate opportunity to become a phoenix and reinvent our lives. Since I was diagnosed, I’ve been telling people I can’t cook and don’t like cooking. Primarily it was because in the past I never really had to and if I were hungry, I went out to eat.

I don’t have that luxury anymore. As much as I’ve been fighting it, I’m learning to cook. Turns out, I’m not too shabby.

I thought I would live my life in Columbus, become an awesome fitness personality and help people lose weight, get fit and love themselves. After my diagnosis with celiac and then endometriosis, I realized I have a higher calling than just fitness. I love coaching, training, teaching, consulting and all those things so I am thrilled I can incorporate my passion in so many different areas. I am reinventing myself. I am in every aspect of the word a Phoenix.

How have you reinvented yourself or become a Phoenix in your own world?

 

Do you suffer from Celiac Sadness?

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If you have celiac disease or think you have celiac disease, you can’t help but go through denial at some point in this journey. For me, it was both before I was diagnosed when I had a million different health issues and then about 6 months post diagnosis when it really hit me what this meant.

In a quick internet search on denial, of course Wikipedia was the top search result but it also was the thing that hit home the most – specifically the term abnegation:

Denial, in ordinary English usage, is asserting that a statement or allegation is not true.[1] The same word, and also abnegation, is used for a psychologicaldefense mechanism postulated by Sigmund Freud, in which a person is faced with a fact that is too uncomfortable to accept and rejects it instead, insisting that it is not true despite what may be overwhelming evidence.

Turns out, it wasn’t denial after all. It was abnegation.

I’ve never heard of this term before but man does it hit the nail on the head. Let me explain…

You see there was always a suspicion in the back of my mind that I might have celiac after a coworker was diagnosed who was having the exact same symptoms as me. I didn’t want to have celiac and I didn’t believe that was the case. I said things to myself like “it’s such a rare disease” or “but I don’t get sick when I eat bread.” She repeatedly would tell me I should go and get tested but I never did.  I didn’t want to.

There I was going from doctor to doctor trying to find an answer. Trying to figure out what was wrong with me. Continuing to hear from my friends and family that I was a “hypochondriac” or “always had something wrong with me.” The answer was right in front of me for years, yet I didn’t want to believe it.

The first few months after diagnosis were a struggle. I ate the same foods every day because I knew they were safe but I was so busy opening my business that it worked out well that way for a few months. But after the shock of diagnosis ended and my business calmed down a little, the denial and abnegation reared its ugly head again.

It really hit home for me that I would never eat the foods I loved ever again.

That I could never eat a delicious piece of sourdough bread at my favorite restaurant.

That I wouldn’t be able to grab a bite to eat just anywhere anymore.

That I couldn’t enjoy foods with friends the way it used to be.

That eating fruit and cheese at weddings was my new reality.

That celiac was my new reality.

I was sad, angry, anxious, depressed and in denial.

Maybe I didn’t have this life long disease. It was a wrong diagnosis. I should find another doctor and get a second opinion. maybe I could have gluten a little bit, every once in a while. Maybe I could just do what I’ve always been doing and hope for the best in the long run.

Yup, all of these thoughts ran through my mind. I was sad for about 2 months. I’m lying – I was depressed. July and August of 2012 were just awful for me. I started blogging September 1st and after starting to find all of you online, that’s when I realized I wasn’t alone and my life wasn’t over. I could turn this into something positive and wonderful.

I want you to know it is totally ok to go through these emotions and have these feelings. A few weeks or months is ok, if you are finding it lasting longer than this, it is ok to seek professional help to get over the celiac sadness. <– This is a real thing. It never really goes away.

Celiac Sadness: The temporary feeling of sadness when you encounter any of these scenarios:

  1. You get glutened.
  2. You realize at a social event there is nothing for you to eat.
  3. You make an awesome recipe only to find out it’s disgusting and you spent $75 on ingredients.
  4. You get upset when you see someone make fun or mock gluten-free anything.
  5. You go to dinner with a friend and they constantly make comments about how you order, what you are eating or how delicious their own meal tastes.
  6. You hit your third grocery store to get all the brands of gluten-free foods you enjoy.
  7. You are on a road trip looking for a Wendy’s or Outback Steakhouse but settle for almonds and a bag of kettle chips at the gas station.
  8. You get angry when another dumb ass celebrity says they are going “gluten-free to be more healthy.”
  9. You realize how many years you spent sick because our medical doctors aren’t properly educated on celiac disease.
  10. You finally come to terms with yourself that this is your life now, you can never go back and you will be okay.

Do you ever have Celiac Sadness? Post below!!

Rebecca

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This celiac mask is really getting on my nerves.

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Disclaimer: Men this post is for the ladies :)

Celiac disease is quite the emotional roller coaster. Whenever it seems as though you’ve got it figured out, something new creeps in just to keep you on your toes. Hence the title of this post about celiac being a “mask.”

Wednesday I’m having a laparoscopic procedure done to check for anything going on in my reproductive organs like endometriosis. I keep having these stabbing like cramping pains throughout the month and my ovulation time is excruciating. And even after cutting gluten, latex fruits/veggies, lactose, corn and poultry – I continue to gain weight right in my belly region. No, I am not pregnant.  

I’ve gained 10 pounds since Christmas and almost 20 since last summer. Today I woke up and weighed 5 pounds more than I did yesterday along with feeling a tightness and fullness in my stomach that I never usually have. Something is going on. I feel completely uncomfortable and out of control. I don’t eat gluten-free processed junk foods so I know that isn’t the case and even if I did do that, the weight doesn’t come on that quickly from over eating.

It really is true that once you resolve the main problem, you start finding things that were masked by the undiagnosed issue. Once you cut one thing, another comes along making you wonder if you are ever going to be able to eat anything ever again.

For me – I was diagnosed with celiac disease, Hashimoto’s hypothyroidism and arthritis last January. At that time, I cut gluten, poultry and latex laden fruits/vegetables. Then in the spring I cut lactose too as Greek yogurt continued to irritate my stomach. Finally in December, I cut corn. I’m not sure there is anything else to cut.

I’ve been able to manage the Hashimoto’s strictly with food. My thyroid levels are perfect with no extra medication. It took a full year to get there but I’m happy I chose not to take medicine.

Then I started feeling sick again last fall, which didn’t make sense because I’ve been very diligent about gluten removal only to find out that I should have cut corn too. The over compensation of corn products sent my body into overdrive again.

As a fluke, my old obgyn didn’t fill my Nuva Ring prescription and I have been off that for almost 2 months now. It’s amazing that my migraine headaches went away during my last 2 periods and I’m sleeping perfectly. Could it be that was causing all my sleep problems for the last 10 years?

Bottom line: I feel amazing. My head is clear. I’m productive again. I feel like I’m on top of my game. I’m not having any stomach pains (the old kind) and all of my blood work levels are perfect. So why am I having these other issues?? It is so cruel to think that I’ve done everything I’m supposed to do and there continues to be one missing link each time I think things are great.

Hopefully, Wednesday is the last missing link and I can get that all figured out. I will post again at the end of this week and let you know how it goes. I get really nervous about these types of procedures simply because I don’t have them often and I am terrified of anesthesia.

What other things did you find out you had along with celiac disease? 

 

Do I have celiac diease? Preparation and questions for your first doctor’s appointment.

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So, you’ve read my post about finding a doctor and now you are ready to make your first appointment! Congrats, that is the first step in getting answers for whatever has been plaguing you for years. I am not a medical doctor and do not understand the complexities of testing and diagnosis for celiac disease on the back end, so I am not going to post what type of medical tests you should ask for or have done. I will post links at the bottom of the post from other credible websites for you to review.

Here are my suggestions and tips for getting the most out of your initial doctor’s appointment for gluten intolerance and/or celiac disease.

Before making an appointment:

1. Find out if your doctor actually has experience treating and diagnosing celiac disease or other gluten related problems. There is no point in going to see a doctor who doesn’t specialize or isn’t familiar with these issues. You are just wasting time on getting answers.

2. Ask how long you will have for your first appointment. My doctor allows 30 minutes for a first appointment and 15 for follow ups. Don’t waste your time with the doctor chit chatting!

3. Prior to your appointment, write down all of your symptoms and chronicle your medical history. This will be much easier to show your doctor and review than sitting there trying to think of them all and realizing you didn’t bring up important ones after you already left.

4. Get your medical records from your other doctors sent over to the new one. You will need to sign a medical release of information and might have to pay a fee but it will be worth it for the new doctor to have all your information in one spot.

5. Know and chart your family medical history. Again much easier than trying to remember it all in a 30 minute appointment.

6. Write down every single prescription medication, over the counter medication, supplement and vitamin that you take. Include all the doses and schedule for each of them. Even ones you might be embarrassed you take like an over the counter weight loss pill.

7. Write down why you think you have celiac disease or problems with gluten.

8. DO NOT change anything about your diet or lifestyle prior to going to the doctor and having tests done. This is essential for finding out what is really going on. You have to get an accurate picture of your body condition in order to diagnose.

9. Understand there is no pill or medication for celiac disease if you do in fact have the autoimmune disease. The only way to manage it is with a gluten free diet.

10. Don’t panic or come to your own conclusions prior to going to your appointment. Be educated on your history, your body and yourself to provide the doctor with the exact picture of what is going on. This is the BEST way to get an accurate diagnosis of whatever is upsetting your body.

Questions for your doctor at your first appointment:

1. How do you diagnose celiac disease? What blood tests do you run? Do you test for the celiac genes? Will you want me to get a bowel biopsy? This past year I’ve realized doctors have so many different ideas of diagnosis. I’ve heard one speak about biopies being the only way to tell and others say genetic presence with condition improvement upon removing gluten are just as acceptable. It’s important to understand your doctor’s beliefs and thinking on the diagnosis component.

2. How quickly does you lab turn around results and when can you make your next appointment.

3. Do you provide aftercare, follow up blood tests, recommendations for support groups in the area and additional help?

4. If I don’t have celiac disease, what other conditions could I have with the symptoms I’m experiencing?

5. Can you refer me to a registered dietician specializing in celiac disease?

6. How often will I follow up with you after my original test results?

7. If I have nutrient deficiencies, what is you protocol for treatment?

8. What other tests should be run along with the celiac disease testing?

You know I love your feedback – Post below for others to see if you thought of things I missed!!

Websites for celiac medical tests:

 

http://www.csaceliacs.info/diagnosis_of_celiac_disease.jsp

http://www.cureceliacdisease.org/living-with-celiac/guide/diagnosis

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

 

How to find a doctor for gluten intolerance and celiac disease

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It’s hard for me to imagine 1 year ago this week I was sitting at Dr. Aukerman’s seminar thinking to myself, “maybe I do have a problem with gluten.”

After 20+ years of having issues, could this finally be the answer I was looking for that would solve all my bowel problems? Would this doctor really be able to finally solve the mystery? As a matter of fact, he did but only because I persisted in looking for answers.

I started Pretty Little Celiac a little over 4 months ago and I couldn’t honestly believe how fast it picked up in the gluten-free/celiac community. I’ve met hundreds of people struggling with the same exact symptoms but are unable to find their “Dr. Aukerman.” I get question after question from readers wanting to know how I finally was able to figure it all out and who helped me get there.

Let me give you my suggestions on how to go about this journey based on my own experience.

1. Don’t ever let someone tell you nothing is wrong if you believe otherwise. One of the most frustrating appointments I’ve had to date was with an allergist trying to find something wrong. There had to be something making me sick in my food so I went to get allergy tested. 100 back pricks later with NO results. Nothing! Not one thing came up as a problem during my test results. That doctor recommended I go to see a GI doctor but also told me that they really wouldn’t be able to figure out intolerances unless I went on a complete food restriction diet and then added foods in slowly. Well, I’d already been to several gastrointestinal doctors and just figured it was a wash.

2. Referrals – And when I say referrals I mean from friends and family that have had simliar problems and went to a doctor who they trust and finally helped them out. Doctors can refer to other doctors but do those doctors listen to their patients? Do those doctors actually take the time to spend with you so you know what is wrong? Do those doctors know about the bedside manner of their colleagues? All of these things are important. I knew my friend went to Dr. Aukerman and trusted him with her care. She also felt incredible since her diagnosis so of course I was going to check him out.

3. Google Searches – Make sure you look for several different terms when you are searching and you include a 50 mile radius for your search. Gluten intolerance doctor, celiac specialist, celiac gastrointestinal are some terms I would start with when researching online. Often these doctors have been reviewed online as well by other patients so that even cuts down on some stress of finding a new doctor.

4. Check with local gluten free or celiac support groups as to what doctors they like seeing and have helped them. Other people suffering from the same problems is the perfect way to start!

5. See if your local University has a celiac center or doctor specializing in the disease at the school. Specialists are often found at large medical centers like Universities because they can get money for research so they stick with places that will pay for those types of things.

**Do NOT take gluten out of your diet if you are going to be tested for celiac disease or gluten intolerance**

You need to keep everything the same prior to seeing any doctor so the tests can be done. If you start changing things prior to testing, it can seriously affect the ability to find out what is actually wrong.

How did you find your doctor? Leave a comment with a tip so others can get the help they need!