The Test Results are Here…

Well, after months of doctor’s appointments, blood draws, tests and procedures – I finally have some official answers. A couple of weeks ago, my gastrointestinal doctor called me with the results of my blood test and endoscopy after consuming gluten for weeks to prep for the tests. My last investigative tests were done in October 2013 and everything looked great. But, I had been strictly gluten-free for almost 2 years. The only way to get accurate results is to consume gluten again. Let this be a valuable lesson to you that BEFORE you get any testing done, you continue to consume gluten and your normal diet. I can’t emphasize this enough. I write about it a lot on my blog and in social media. To get accurate results, don’t change anything before seeking medical help.

So…

After years of thinking I have celiac disease, it turns out that I actually have non-celiac gluten sensitivity and Barrett’s Esophagus. There is a great article by Jane Anderson on about.com regarding this and it’s correlation to celiac disease and non celiac gluten sensitivity.   I mentioned in a previous post that I was on a mission for an accurate diagnosis because of education from the International Celiac Disease Symposium. I didn’t believe the tests I had done were accurate or enough to confirm a celiac diagnosis. Obviously, I am frustrated and disappointed that yet again I went years without an accurate diagnosis.

The symptoms of non-celiac gluten sensitivity can overlap with celiac disease, but they also have different ones as well. According to the National Foundation for Celiac Awareness, “Non-celiac gluten sensitivity shares many symptoms with celiac disease. However, according to a collaborative report published by Sapone et al. (2012),  individuals with non-celiac gluten sensitivity have a prevalence of extraintestinal or non-GI symptoms, such as headache, “foggy mind,” joint pain, and numbness in the legs, arms or fingers. Symptoms typically appear hours or days after gluten has been ingested, a response typical for innate immune conditions like non-celiac gluten sensitivity.”

I specifically struggle with the joint pain, inflammation, numbness and head aches, which looking back makes total sense. Even after consuming gluten again, I didn’t get the major stomach aches that I used to get before going gluten free. I was very bloated but I didn’t get sick to my stomach and that surprised me. It also reinforced my decision to go forward with the testing to get accurate answers.

So, what about the Pretty Little Celiac? Well, the reason I started this blog was to not only share my stories (the good and the ugly) but I wanted to advocate for this disease. This experience for me just reiterates how complicated getting a true diagnosis can be and the emotional and financial toll it takes on a person going through all of this. All of these experiences taught me so much about living gluten-free and celiac disease. Meeting all of you virtually through the internet and social media, along with all of the people I met at Expo’s taught me so much. Just because I don’t have celiac disease, doesn’t mean I will stop advocating for all of you and the gluten-free lifestyle. I am not going back to eating gluten because it really does make me sick and makes me feel terrible.

My experiences going forward will be more based on gluten-free living and the challenges and life lessons associate with that. I want to focus a lot on the challenges associated with gluten-free living but also the other auto-immune diseases that I struggle with such as Endometriosis and Hashimoto’s Hypothyroidism along with GERD/Barrett’s Esophagus. Obviously, with a name like Pretty Little Celiac, I would never want to deceive anyone to think that I have something when I don’t. I am going to spend the next few days or week brainstorming options, but if you have any ideas – let me know.

I’m sharing this information with you because I want to have full disclosure. I want you to know despite thinking I had all the answers 2.5 years ago, things change. New information is discovered and that’s okay. At first, I didn’t want to let all of you down but then I realized this is just part of the journey, part of the discovery and frustration that we all go through trying to find answers.

Have you had a similar story? I would love to hear about it. Email me or post it in the comments below for others to see we aren’t alone.

Thanks for being so loyal and such awesome followers.

Comments

  1.  Sue Rice says:

    Thank you for sharing your journey and this next chapter you are about to begin. You continue to inspire to a life of wellness, no matter what your health challenges are labeled.
    I really appreciate, as do many others I would think, how much information you have made accessible and how many people you touched along the way.
    I hope you will keep us informed of your new endeavours. I too suffered from Endo for many, many years until surgery. Best wishes and I look forward to cheering you onward on your new path.
    Sue

     

    •  Rebecca Black says:

      Sue, Thank you so much for this heartfelt comment. I appreciate it more than you can imagine! I’m going to keep almost all of the content on this site and probably transfer it over to my new blog http://www.RebeccaRefined.com – that way people can still find a lot of the information that is still relevant! I think the comments from thousands of people are just as important as my blog posts for people to be able to see they aren’t alone. That was the whole point of this blog was to let people know they aren’t alone in this journey!
      Glad to know you will stick around
      Rebecca

       

  2.  Erica Markee says:

    Hi! Thank you for sharing this story. Im in the process of finding a diagnosis for myself. This is all new to me and over the last 2 months what I’ve always thought of as just “a fast metabolism/digestive system” come to find out I have osteopenia and all my celic panel blood tests came back as strong positives.. I’m waiting for my biopsy, my youngest son is going through all of this as well.. Can you let me know what your blood tests were like? Did you have the antibodies on the TtG tests as well as positive gluten allergy tests? Thanks for any help

     

  3.  Chatmal says:

    I’ve been following you for a while (about 2 years now) and am part of the support group. I too am non-celiac, so they tell me. I get much of what you described: immediate runs followed by brain fog, possible migraine, fatigue. I’m not even sure what else anymore! I’m not willing to eat gluten because of how terrible I feel when I get glutened, but I may still do the gene test to be sure. Auto-immune diseases seem to run in the family so it’s hard to tell if there’s something else wrong with me or if that’s it. Clearly there’s more work to be done! I’m just grateful to have insurance again so I can continue the quest for answers.
    In my own trials, I think I may also be Corn Sensitive. I’m testing it now. I instinctively was avoiding most bread, pasta, oats and processed foods. So far, I think Corn gives me brain fog, fatigue even with 12-hours sleep, bloating, inflammation, joint swelling / achiness and weird skin breakouts that are not like normal pimples (for someone over 40?). Blemishes appear about 2-4 days afterward and have been on my neck, cheeks and earlobes (??). Most of these symptoms actually seem to have a 24-36 hour delay which is why it’s been so hard to notice and associate with corn. Perhaps it’s why 2 days after a party with tortilla chips and salsa or guacamole, I’m zonked and can barely get out of bed!
    Corn is such a special ingredient! It’s in everything — candy, soda, GF chips, GF breads & baked goods, and practically every medication has corn starch! It explains why I was fine with my homemade brownies with corn-free flour, but not after a store-bought cupcake. I’ll have to find my threshold since I need my daily meds!
    So, Rebecca, just know you’re not the only one on a health quest! And part of the quest is hoping the doctor, PA or NP will listen to us and our crazy-sounding theories!

     

  4.  Nancy says:

    It must be a bit of a relief to know that you can move forward knowing that you do not have celiac disease. I started following your blog about a year ago when I suspected that gluten was the root of my issues: brain fog, lethargy, numbness in my arms and feet, headaches, and such. Ultimately, I was diagnosed with Hashimoto’s which shocked me. Since then, I try to eliminate as much gluten as I can from my diet, and it seems to be working. Stress is the biggest trigger for me now. I will continue to follow you, and I wish you the best of luck with whatever the future may bring.

     

  5.  Kaila says:

    Wow, what a touching story. I’m so glad that you were able to find some answers. My story is almost the opposite of yours. I presented as a celiac with atypical symptoms. Now, I had weight loss and stomach pains, but they were mild in comparison to my other problems. My GI looked for everything but celiac. (I claimed wheat bagels were the only food that made me feel better). During my diagnosis process, I gained such a deep respect for my GI because so many diseases/conditions have similar symptoms when you’re looking into the digestive tract (and even other immune problems/organ systems too!). Once I went gluten free (post Celiac diagnosis), my acid reflux magically disappeared within days. I hope that the Barrett’s Esophagus diagnosis helps solve/explain some of your other conditions, and I look forward to following your blog to learn more about your journey.

    After years of thinking I have celiac disease, it turns out that I actually have non-celiac gluten sensitivity and Barrett’s Esophagus.

     

  6.  Hayley Haynes says:

    How long did you eat gluten before getting the blood test panel done to test for celiac? I am working with my new thyroid dr taking Amour and my chiopractor (for fibromaylgia) to feel better but if things don’t improve want to test for food sensitivities. The test is expensive so I want to do it correctly but dread the side effects of adding gluten back into my diet.

     

  7.  Pats44 says:

    For me it makes little difference. Gluten is bad for you, so avoid it. I am either coeliac or have ncgs. I only found out by doing the Fodmap diet – had no idea what coeliac or gluten was before and despite many trips to the docs had never been tested. No ive been gf for almost 6 months and theres no way im glutening myself for weeks for a test, just no way. So I’ll continue to eat GF and take vitamins

     

  8.  Angela says:

    Virgin coconut oil is the best thing to take for GERD,, by the spoonful, up to 3 tablespoons per day.
    For inflammatory bowel conditions, eat two Mrs Crimbles coconut macaroons (gluten-free) per day.
    Very best wishes
    Angela

My Experience with the Gluten Challenge

When my  new GI doctor told me I needed to start consuming gluten again to get an accurate diagnosis, I was immediately confused and conflicted. For 2 years I’ve mastered the art of living gluten-free and wasn’t even sure I wanted to go this route but I wanted to get answers so I agreed. That was in October right before we moved to Virginia.

I finally got into a GI doctor here, Dr. Solomon Shah in Fairfax, VA and was very impressed by his knowledge of both celiac disease and food sensitivities. I was instructed to consume way more gluten each day for 2 weeks up until my upper endoscopy appointment. If you follow me, you know I love soft pretzels. That’s basically what I’ve been eating several times a day, along with my regular gluten-free meals.

He also instructed me to eliminate all dairy products due to the slight possibility that it may be dairy and not gluten as the culprit for my body. Since I eliminated lactose a while back, it wasn’t that difficult for me to cut the rest out. Trying to read labels for dairy seems much easier.

For the past 14 days, my body feels like it’s in a sausage casing and any push on my skin is bloated and puffy. I can’t wear my wedding rings. My ankles have some mild edema going on and my face is abnormally bloated. My stomach just hurts and I’m not sleeping well. There is this overall sense of brain fog that I can’t seem to shake and I’m literally exhausted. Although part of the exhaustion is from my increase in workouts, but we can talk about that on a different post.

My arm has had a lovely rash on the inside of my right elbow and I’ve been experiencing an abnormal amount of heartburn. My joints feel extra achy and I’m getting really sore after my workouts.

Could this rash be from the gluten challenge?
Could this rash be from the gluten challenge?

Yesterday I had my endoscopy. It doesn’t really matter how many times I go for these procedures, I still get nervous about the anesthesia. My right arm has the perfect vein for IV’s and blood draws but the nurse insisted on using the top of my right hand. I know from experience that this is a bad spot for me. My tiny little veins are a challenge and I’ve struggled with that spot in times past. The nurses insisted and I let her try my hand. Well, I never had that much pain from an IV start in my life. Even my husband said my hand squeeze hurt him and he knew by the way my body was writhing around in the bed that it had to be painful. I know the nurse felt so bad but I warned her! The next stop was the spot I asked her to use in the beginning and it went in without a hitch. Moral of the story? Patients know what they are talking about!

IMG_1440-1024x1024
Bracelets for my Upper Endoscopy

After the procedure I don’t remember much but I do know I was tested for something called h. pylori due to some gastritis and Barrett’s esophagus along with the celiac biopsies. Call me weird but I’m fascinated by the pictures of my innards! The results will come in 3-4 weeks and I should finally have some confirmation one way or another.

So, what’s the point of me going through all of this? Why did I do the gluten challenge? Why didn’t I just accept the celiac diagnosis? These are all great questions.

I guess for me I feel like I’ve come this far to not have a conclusive answer. I share my experiences on here and believe I owe it to all my readers to know that even I continue to struggle years after my diagnosis. I run into challenges associated with diagnosis and am looking for answers to more questions about not feeling 100%.

Don’t be discouraged into thinking you are the only one fighting this battle or having difficulties finding answers… because you aren’t! We are all in the same boat and the only way to get through the rapids is to row together.

Effective today, I am 100% gluten-free and lactose free. I will be for the rest of my life. I did the gluten challenge so I could confidently say I tried everything in my power to get the correct results. The results may be inconclusive but I know for a fact that gluten makes me sick, especially after my gluten challenge. And to me… that’s all that matters.

Should you do a gluten challenge? This is a tough question and a decision you will need to make with your medical provider. I can’t make that decision for you, I can only share my story and let you know my experience with the challenge. I will take this time though to re-emphasize the importance of waiting to eliminate gluten from you diet until all of your testing is complete!

If you’ve done the challenge and are willing to share your story, please feel free to post it in the comments section. That’s what makes this community so great is the ability to share our individual stories and let others see they aren’t alone.

Until next time.

Comments

  1.  Sue Rice says:

    After 5 months of becoming more and more ill, weight loss of 30 pounds (1/5 of my body weight at the time) in 3 months, liver complications, gastritis, non-specific colitis, rectal ulcers (diagnosed via endoscopy and colonoscopy – but no test for celiac was done) and my family doctor closing practice, I was left alone and on the verge of being hospitalized. I went on a waiting list for a new family MD and took matters into my own hands using natural herbs and totally clearing everything out of my diet.
    Long story short, a year and a half later, I am back up 20 pounds, survived multiple “be prepared for cancer diagnosis”, multiple specialist (gastro last with the longest wait time) It’s gluten, I’ve tried reintroducing it and I get the week or so of symptoms. Intense gastro pain, system back up, tremors, migraines – you name it.
    My gastro was angry that no one sent me to him first (the small local hospital I was referred to was sure I had cancer as I lost so much weight so fast) as I now have been gluten free for a year and he can’t tell if I am 100% celiac unless I do the challenge.
    I work a job I love that requires my brain to be sharp, I like my weight where it is, even though in high school I wasn’t this tiny – it’s much better than before) If I did the two week challenge by gastro feels it would be a HUGE setback for me. Even just a cross contamination now takes me totally out of commission.
    As I have been strict in my regime and I am textbook symptom wise, he is given me an out from the test as I have promised to never eat gluten. Should another test be developed, he’s going to call me.
    I applaud you for your undergoing of the challenge and very much like you stating it was your choice. My choice is to not put my body through it and continue gluten free as although a slow process, I am feeling better everyday. You are so right – don’t stop eating gluten until you’ve had the test is the best advice.
    Good luck with your results. Will be sending you positive vibes.

     

    •  Rebecca Black says:

      Sue, thank you so much for sharing your story! I think people being able to see that it is a personal choice to be made without judgement. These issues are so personal and I am grateful for your story. Hopefully, by just sharing our stories we can help people make their own decisions (with the help of their doctors of course!)

       

      •  Sue Rice says:

        No judgement is so important! We all know what it’s like to be “that customer” in a restaurant, “that guest” etc. So very much love what you are doing by providing a forum of support, empowerment to make your own best choices and a community in which to share.
        Hope you have a speedy recovery from the gluten-ing

         

  2.  R. Roth says:

    apart from the 3 to 6 months or more needed to remove inflammation caused by your gluten challenge from all your body tissue and rebalance hormones and electrolyte ratios, sadly duodenal spot biopsies may still miss villi changes and therefore provide an inconclusive diagnosis. More importantly, any results so obtained will not be able to discern if you are non-celiac gluten sensitive or eliac nor show any concurrent issues to celiac disease (associated casein, legume, ovalbumin, salicylic acid intolerances, beta carotene/interleukin-15 switch, etc.).
    Our patients have had the most beneficial answers/results (and newest research recommends this route over previous gold-standard of biopsy) by getting genetic B1 subgenes of HLA-DQ2 and DQ8 tested (e.g. Enterolab.com “Panel B”). Latter also provides answers as to “what else” to avoid.

     

    •  Rebecca Black says:

      Thank you for your comment. I’ve already had the DLA-DQ2 and DQ8 tests done. I based my decision on information I obtained while attending the International Celiac Disease Symposium along with collaboration with my doctor. Again, this is the choice I made for my body and am willing to work take the chance. I understand others are not. But, with so many people offering differing opinions on how to diagnose etc. I feel it’s important to share my story and my choice. I didn’t write this post to argue with people but rather to let them know this is a difficult journey regardless of the route they choose to find answers.

 

 

My Search for Answers: An Update on my Health

My Search for Answers: An Update on my Health

It’s been a while since I wrote a post about my health status and primarily it’s been because I feel in limbo. You might remember that I attended the International Celiac Disease Symposium in September hosted by the University of Chicago Celiac Disease Center. During some of the sessions, I realized my diagnosis of celiac disease wasn’t as conclusive as the doctors were suggesting nor did I have the correct tests done when I was diagnosed in January 2012. I left there on a mission. What is really going on with me?

I sought a second opinion from a gastrointestinal doctor recommended by other celiac disease folks in Columbus, Ohio. I knew time was of the essence because we were scheduled to move out-of-state mid-October. Dr. Salt reviewed all of my previous tests and said he wasn’t sure I had celiac disease. My tests were out dated and inconclusive. He believed I may have Chron’s disease. He also felt my thyroid and felt lots of nodules and said I needed to follow-up with an endocrinologist once I got to Virginia.

My upper and lower scopes were scheduled and the doctor performing the tests had some choice words for the doctor that previously diagnosed me. It wasn’t encouraging. On a wonderful and positive note, my intestines looked great! But, I’ve been strict about living gluten-free for 2 years now, so likely any damage would have healed during this time. It made me feel better though knowing my innards are looking healthy.

Dr. Salt ordered a small intestinal bacterial overgrowth hydrogen test, which was a piece of cake. The most difficult thing about the test is fasting and the cost. Insurance didn’t cover it. His office called me 2 days before we moved out-of-state to say I did test positive for SIBO. I needed to follow-up with a gastrointestinal doctor in Virginia. I took it upon myself to go on a gluten challenge. There was no way to get an accurate diagnosis and testing if I was gluten-free. Which leaves me to a reminder to all of you reading this, please don’t stop eating gluten until you’ve had all of your testing completed! I’ve been eating gluten once a day for the last 8 weeks to confirm my celiac diagnosis. Doubling down on probiotics has helped with the stomach aches but I can tell you my joints hate me, my pants don’t fit anymore, my migraines are occurring more frequently, my joints are tingly and almost feel numb, I’m sleeping all the time and I’m feeling more sad/moody/anxious than usual (some would call this “brain fog”). I wouldn’t recommend doing this on your own but I’m stubborn and on a laser focused mission to find answers. I do know at least that gluten affects me regardless if I am confirmed with celiac disease or they tell me I have non-celiac gluten sensitivity. I don’t care, I know how I feel now with and without it. Without gluten is the answer.

Once we moved to Virginia, we transitioned to new health insurance which took about 2 weeks to finally get that situated and then I’ve been trying to get doctor’s appointments here. I did get my thyroid ultra sound which is positive for Hashimoto’s but they also found a small lump/cyst which I will now need to follow-up with a surgeon for a biopsy.

I’ve been to a OBGYN here to get established as a patient to help me with my endometriosis. I’ve been to a general practitioner to help me get whatever is going on with my body figured out and to follow me through all my treatments. I’ve been to an endocrinologist who I was very unhappy with when he told me to investigate bariatric methods for weight loss and suggested I go on a 500-600 calorie diet all while explaining he has at least 3 patients a day with the exact same symptoms as I do but he has no answers!! What the hell? Very encouraging. (sarcasm noted)

My new primary care physician was great. I went in there will all my medical records, test results and my own written bullet point summary of my health situation. She confirmed that I do have both of the celiac genes, we discussed me feeling better on a gluten-free diet and now that I’ve been eating gluten she ordered the correct and most updated celiac blood tests. She also ordered tests for arthritis, thyroid problems and some deficiencies.

During the celiac disease symposium, I learned the following things about properly diagnosis celiac disease:

The 4 out of 5 Signs Rule for having celiac disease – you should have 4 of 5 of these done in order to diagnosed celiac disease:

1. Presence of signs and/or symptoms compatible with celiac disease
2. Positive serology testing (TTG +/- EMA)
3. Compatible HLA genes (DQ2 e/0 DQ8 positive)
4. Positive internal biopsy with enteropathy (damage) typical of celiac disease
5. Resolution of symptoms with a strict compliance with a gluten-free diet

Well, now I know I have #1, #3 and #5 but #4 was normal and #2 came back normal after eating gluten again. She also did extensive testing for the thyroid problems (only after I did all my research online to make sure I got the exact tests needed for proper diagnosis). Those results haven’t come back yet.

So what does this mean?

  • I still need to follow-up with a gastrointestinal doctor here in Virginia and have another colonoscopy to see if I have any damage to my intestines.
  • I need to follow-up with a new endocrinologist about my thyroid and the biopsy.
  • I might have non-celiac gluten sensitivity and that’s okay. After this trial period I know living gluten-free for the rest of my life is the only option for my health.
  • I’m dedicated to living a gluten-free lifestyle and supporting and advocating for all of us (regardless of your reason for living a gluten-free life!)
  • I’m going to continue to search for medical answers and share my story with all of you to help you too!
  • I’ve learned that nothing is ever cut and dry with auto-immune diseases.
  • And finally, but maybe most important, I feel completely betrayed by my other doctor. I trusted him. I thought he knew what he was doing and finally found my answers. I am angry all over again.

The National Foundation for Celiac Awareness has an entire section on their website covering non-celiac gluten sensitivity. In reading it for research on this blog post, I know notice that I have every single one of those symptoms for NCGS. Look at what they say directly from their website:

What are the symptoms of non-celiac gluten sensitivity?

Non-celiac gluten sensitivity shares many symptoms with celiac disease. However, according to a collaborative report published by Sapone et al. (2012),  individuals with non-celiac gluten sensitivity have a prevalence of extraintestinal or non-GI symptoms, such as headache, “foggy mind,” joint pain, and numbness in the legs, arms or fingers. Symptoms typically appear hours or days after gluten has been ingested, a response typical for innate immune conditions like non-celiac gluten sensitivity.

If the symptoms are so similar, how is it different from celiac disease?

Non-celiac gluten sensitivity has been clinically recognized as less severe than celiac disease. It is not accompanied by “the enteropathy, elevations in tissue-transglutaminase, endomysium or deamidated gliadin antibodies, and increased mucosal permeability that are characteristic of celiac disease” (Ludvigsson et al, 2012). In other words, individuals with non-celiac gluten sensitivity would not test positive for celiac disease based on blood testing, nor do they have the same type of intestinal damage found in individuals with celiac disease. Some individuals may experience minimal intestinal damage, and this goes away with a gluten-free diet.

Research has also shown that non-celiac gluten sensitivity does not result in the increased intestinal permeability that is characteristic of celiac disease. Increased intestinal permeability permits toxins, bacteria and undigested food proteins to seep through the GI barrier and into the bloodstream, and research suggests that it is an early biological change that comes before  the onset of several autoimmune diseases.

What I really want you to take away from this blog post and the reason I share the detailed account of my journey with this is you know are armed with extra information on your mission for answers. Hopefully, some of you reading my blog will realize you have similar symptoms as me or you have more information than before to get accurate testing and become and advocate for your own health. No one knows your body like you and it’s essential to put that information together with the medical world in order to get correct diagnoses!

Of course, I will keep posting about my journey and I would love to hear any of your stories. Any of you going through the same thing? Have you been through the same thing? 

Many of my readers not only learn from me but from your comments as well, please feel free to share your information in the comments section below. 

Your TMI celiac and gluten-free advocate

Comments

  1.  Amanda Yoder says:

    Wow you amaze me (and inspire me somewhat) to spend the time and money to keep trying to figure this out! I know I’ve been helped by going strict gluten free and have a reaction to even the tiniest bit, but no Dr. has helped me–the primary care just said well if you feel better, keep doing that and a gastro I went to see just wanted to do the scope, which I’m uncomfortable with as a first step–I like to leave my insides alone from machinery if possible. I worry about down the road because I don’t have the documented illness and I had already unknowingly done the elimination diet before going to the Dr. the first and when I tried to re-start gluten (just one slice of pizza), I had constant stomach pain to the nth degree and constant diarrhea!

     

    •  Rebecca Black says:

      HI Amanda! Thanks for your comment. I guess I promised myself that I would chronicle my entire journey and it’s my mission now to makes sure my own health is under control. I am fortunate we have health insurance and can afford the medical procedures. If anything, my experiences can help all of you in finding your own answers in this crazy journey! Thanks for your comment
      Rebecca

       

  2.  Susan says:

    Wow you are beautiful and glowing!! You can see when someone has been living gluten free, they are so much more attractive. I’m finally going for all my tests and colonoscopy next week Friday whoop whoop!!

    My gastrointestinal doc said that if you need to be on the gluten challenge for at least 3 months if you have been off so long, or else you will get a sure fire false negative.

    With regards to your thyroid, I hope you are avoiding all forms of soy! (Please investigate further on the link of soy and thyroid issues.) Going off gluten, I upped my intake of soy which had disastrous effects on my thyroid.

    Good luck beautiful lady, I love your posts! xxx

     

    •  Rebecca Black says:

      Susan – Soy is definitely on it’s way out of my diet. I never really paid attention to it because dairy made me so sick. Especially when I bought fancy coffee drinks, they only offer soy or regular milk/cream. Hopefully, my new gastro doctor here in Virginia will really be able to put me on the right track.

       

  3.  Allison Love says:

    I got diagnosed two years ago with Celiac. I only had lab work done because I have a congenital heart defect and putting me under sedation is more dangerous to me.The gastroenterologist I saw at my local hospital wanted to do a scope even though he knew that I had a congenital heart defect. I had a lot of questions for him which he didn’t answer. I am now switching my care to a new gastroenterologist at the hospital that I go to for my cardiac care. I am nervous but excited to see what the new gastroenterology team has to say. I am looking forward to getting the answers to my questions especially because I am getting ready to leave my community college for my local university if I get in. Anytime I get a little bit of gluten by accident my gi symptoms come back worse each time. I am down for at least a week or two. I know that I am lucky to have my state medicaid which will cover appointments and tests with specialists.

     

    •  Rebecca Black says:

      Allison- Bravo to you for taking control of your own health and getting a second opinion. I commend you for that because I know it can be tough. Thanks for sharing and good luck on your journey! Rebecca

       

  4.  Candice says:

    I’m sorry to hear you are going through all of this. I know how frustrating it is to think that you have all your health problems figured out, only to feel that there is still something not right. I was diagnosed with NCGS after a rule out of celiac. I felt 90% better after going GF, but three years after I was diagnosed I started having symptoms again. This past April I found out I have other food allergies and after removing those foods from my diet, I’m finally feeling better. As the wise Ben Franklin said, “energy and persistence conquers all.”If there is one thing I have learned from my experience, it’s that I am my own body’s expert, and will keep advocating for myself, and my health. Good luck in your continued search.
    Candice recently posted…AllerEnergy: Soft Pretzels!My Profile

     

    •  Rebecca Black says:

      Candice- Thanks for sharing and now I know that this is a pretty common phenomena. It’s very frustrating when you think you found the answer only to find yourself looking at Pinterest in a doctor’s office again. I’m finally started to get some better answers and working on adjusting my diet as well to maximize healing for my body. Love the Ben Franklin quote – that’s my mindset right now!
      Rebecca

       

  5.  lfinks123 says:

    Hi PLC
    I have been following your blog since last year when my 12 year old daughter started having skin issues, and GI issues. She was scoped, blood work etc. All neg for celiacs. They told us she has IBS. When we removed gluten from her diet she stablized and has been gluten free for a year now, yet still has ongoing boils. She has been diagnosed w/ a skin disease, she gets boils. It is classified as an autoimmune disease. You have many autoimmune diseases too. I believe all celiacs, as well as all autoimmune issues stem from “leaky gut”, which your Doctor will not acknowledge. I had a stool test done on my daughter by Enterolabs, which analyzes what foods you are reactive too. She is reactive to gluten, egg, soy and dairy. We are working with a naturopath to try to heal her gut. This is all new to me, I am not a new age hippie type person, but have learned so much about medicine, etc. Per what i have read, immunecells in our gut have become sensitive to proteins from certain foods or bacteria. These immune cells launch an attack (autoimmune response) whenever these proteins (our triggers) are present. Hashimotos or Graves disaces is when autoimmunity attacks the Thryoid gland. We all have to be our own advocates out there (in this case I am my duaghter’s!). good luck in your search, i hope you consider researching my theory!

     

    •  Rebecca Black says:

      Thanks for sharing your experience with me and my readers! It’s times like these that eventually help others the most. The more we can talk about the issues like this in our lives, in a community that understands, the easier it is to be an advocate for your own health. You are correct about auto-immune diseases. They love to hang out with each other in our bodies. I’ve always found that fascinating. I’m glad you finally found answers and are on the road to recovery with your daughter.
      Rebecca

       

  6.  connie curtis says:

    There are other testing options that can tell you about celiac and food allergies so that you dont have to eat gluten. Its through DNA. A good site for information in general. I recommend Gluten Free Society. If I hadnt found this site and doctor. I would be getting sicker so I offer this as support to you so that you will get better and get the correct diagnosis. Good luck.

     

    •  Lou says:

      I stopped reading your blog as I knew you were on the wrong path and leading people to hell that need help.

      BUT: I am proud of you now and hope you have reached all the people you miss lead on your blog. I can tell you I did read it but stopped when I could tell you were not leading people down the correct path.

      My story is almost like yours but I had gut problems that had to be address before I got to the point that I could say. I have my health back with damage, because I couldn’t find help. I had a blood count of 7, I hadn’t eaten wheat and dairy for a year my DR said I had to eat gluten and thru it up in the hospital…She then said you have Celiac Disease, but the 27 biopsy’s showed nothing. BUT did make me want to look it up on the internet to get help that lead me to the correct testing to prove my feelings. Glad that you found the correct path for your health and now can help people.

      I am so glad that you got help and now will help everyone that need it when they find your website. I will not delete your emails. Thank you for tell us. (I don’t know why I even opened this email, but do now)

       

      •  Rebecca Black says:

        Thanks for giving me another try Lou. Happy Holidays!

         

    •  Rebecca Black says:

      Thanks for the comment Connie! I’m glad you are feeling better and I appreciate your comment  Rebecca

       

  7.  Sharon says:

    Your story sounds so familiar to mine. I am now trying to find some new Dr.’s since as of the new year I am no longer HMO. I think I needed to get all these tests done too. I asked my last Dr. and she said no, just continue eating GF. You have an intolerance. They never tested me for Celiac’s until I was GF for 3 years. They then wanted me to go back to eating Gluten for 3 months. I just did this, but gained 30 pounds. I feel like a fat, gross cow. They then tell me that I needed to lose weight cause now I am overweight. Thanks so much for this blog. I know that I am not alone.

     

    •  Rebecca Black says:

      Thank you Sharon for leaving a comment. I appreciate it! You are not alone and we can get though this with the support of each other and sharing our experiences with others. That’s why I started PLC.  Rebecca

       

  8.  Alexa says:

    Hi Rebecca,

    First off I would like to say that I have Crohn’s Disease, which is why I follow you! I eat a diet free of gluten, most dairy, corn, soy, peanut, tomato, flax, lentils, peas, pineapple, grapefruit and more because those things irritate me. I am 19 and have had it since I was 12. If you need anything, feel free to email or Facebook me. You’re posts have helped me through some tough times and gave me hope about feeling good and having lots of food options. Keep doing what you’re doing, you are close to answers!

    XO,

    Alexa

     

    •  Rebecca Black says:

      HI Alexa! Thank you for your message. I love that I’m able to help you even though we have different health problems. I must say being ages 12-19 and going through this, you will be able to conquer the world! Rebecca

       

  9.  Shannon Martin says:

    Hello,
    Your story sound so familiar too me. I was diagnosed with Endometriosis two years ago. One year ago I had surgery to remove as much of the Endometriosis as possible. During the surgery the doctor found out I did not have it at all but had an abundance of Scare Tissue growth throughout my abdomen, from a previous surgery. The mis-diagnosis of the Endometriosis is very common for Abdominal Scar Tissue overgrowth. I never truly felt any better after the surgery a year ago and came down with some sever symptoms that were extremely difficult to diagnosis. Every test I took came out beautiful. All I wanted to hear from the doctors was that they had a bad test result and that they knew what was wrong with me. My doctor suggest that I try to go Gluten, Corn and Soy free about 5 months ago. Slowly most of the problems slowed down but still have not gone completely away, I have found Soy to be just as bad as Gluten for me. Then 2 months ago I was diagnosed with SIBO. I have found that going off of all flower (of any kind), yeast and especially sugar products makes a massive difference. Even Gluten-Free cupcakes and cookie make the SIBO worse. I have recently gone on a Candida diet plan with minimizes yeast, gluten and sugars into your system and have found it to be the best thing I could do for myself.

     

    •  Rebecca Black says:

      Thank you Shannon for sharing your story. I realize this is such an ongoing journey but it is completely frustrating at times. I’m working on changing my diet all over again and re-evaluating what foods my body responds to! Again, Thanks for the comment. Rebecca

       

  10.  Ronnie says:

    I’m glad I read this. At first I wasn’t because I felt like this story would hit closer to home for me. Well sounds alot like it would. Thanks so much for this post. I look forward to hearing more about your diagnosis.

    Ronnie

     

  11.  lori says:

    Hi Rebecca, i too have done loads of research on all of this. This is the first time i hear about the part about non celiacs wont test positive on blood tests. Could you verify what you mean by this. Do you mean the genetic testing or the TTG test. Knowing this part helps me answer alot of questions. Thank you for all your hard work. I am a huge advocate for celiac and getting the proper diagnosis before going gluten free. Once you make the switch it is very difficult to get all the aswers. I am always advising for people to do all the testing before going gluten free.

     

  12.  Heather says:

    I have 5 out of 5 of the indicators listed above.  My biopsy results were negative but gastro says the visual scan done when they were taking tissue samples of my badly damaged intestines was enough to make the diagnosis. I had also been told by a rheumatologist (who was the one who finally did the blood work for Celiac and made the initial diagnosis) to go ahead and start the gluten free diet immediately. So I had been GF for 2 weeks when I had the endoscopy.
    It’s been 5 years since going GF and I feel much better, but am not symptom free because of other health issues.
    In the 5 year journey, I have been diagnosed with interstitial cystitis (a bladder condition thought to be autoimmune), hiatal hernia, GERD, colitis, and endometriosis. Prior to being extremely ill 6 years ago, I was pretty normal. I was a little overweight, tired a lot, migraines, seemed to get a few viruses (cold, flu, sinus infections) a year. Then my immune system just crashed under severe stress. Good news is, I rarely get sick anymore and I am at a healthy weight. I just have a lot of bowel/bladder issues. A follow up endoscopy last year revealed that my intestines were completely healed, but also that I had the hiatal hernia and GERD. Then a colonoscopy revealed the colitis. I have good days, I have bad days, but I am convinced that gluten is evil.  When my middle daughter started getting migraines at 9 years old, was tired all the time and got severe stomach pain, we had her tested. She didn’t need the gene test because obviously she would have had it (because of me), but the endoscopy and blood work were positive. The specialist she saw said it was the highest indicators she had ever seen. She hasn’t had a migraine or stomach ache since going gluten free. She enjoys soccer and softball and is exceling in school! OMG, I went on and on!  Good luck to all of you trying to find the answers, but in my opinion going gluten free can only help regardless of who you are!

     

  13.  kunzfamily says:

    Hi, I have celiac. I deal with joint aches, headaches, other daily side effects. In September, I started reading Kimberly Snyder’s Beauty Detox book. I lost weight & never felt better. I had a lot of energy. The only negative( for me) was the Food item she suggests to eat in moderation is corn. Corn is a big no-no for me. It’s on the highest side effecting the list of food intolerances. Other than that, I loved her advice. Her recipes. Her science to back up her reasoning, helps wrap your mind around why, what you’ve done in the past doesn’t work. After a week of following her plan, every terrible side effect deminished. I loved how I felt.
    Then at thanksgiving until now, I started eating all the staples (GF of course) and stopped following her advice on when to eat (which is not painful like the detox diets I’ve tried in the past. ) . I’ve had very low energy, body aches and pains, drinking more coffee and alcohol, feeling super dehydrated even though I’m drinking water. now coming down with a bad cold and over all feeling slumpy. When i was taking her advice and sticking to her plan, I felt I was able to fight off colds, and I did.
    After reading many diet books, trying weight loss supplements from Powder City, teas, seeing a nutritionist, chiropractor for weight loss, Kimberly’s book is the best fit for me. It’s about life changes & I want to feel great again, so I’m re-reading her book.  if you don’t want to buy her book, her website & almost daily emails gives great tips. Google her.
    kunzfamily recently posted…Here comes the Funky smile…My Profile

     

    •  Rebecca Black says:

      Thank you for the recommendation!

       

  14.  vickie says:

    Would you recommend Dr. Salt. I live an hour and a half from Columbus. I really need a Dr. that understands Celiac.

     

    •  Rebecca Black says:

      I loved Dr. Salt! Yes, I would recommend him.

       

      •  Vickie says:

        Thank thank you thank you. Dr. Salt was wonderful. Many miles to go in this journey but he was/ is so good at listening to what I described as pain and needs. He was the first ever to hear what I said…….I am starting to be hopeful.

International Celiac Disease Symposium 2013: Recap Day 1

International Celiac Disease Symposium September 23-25, 2013
International Celiac Disease Symposium September 23-25, 2013

Wow. Just wow. That is all I can say right now after my first day at the ICDS 2013.

I am forever grateful and thrilled I was able to attend this monumental event in Chicago. The information I learned already is so incredibly valuable and helps wade through much of the misinformation you find on the internet or hear through the grapevine.

The biggest thing I’ve learned so far is not to trust information found on the internet, even studies! They are filled with inaccuracies, small sample sizes or inconclusive information that can spread like wildfire. There are world-renowned celiac experts at this conference, sharing their findings, beliefs and information about celiac disease.

If you aren’t sure what the heck I’m talking about yet, the International Celiac Disease Symposium is a 3 day event held every 2 years in cities all over the world. Here is what the conference is all about directly from the ICDS2013 website,

“While the 15th ICDS meeting will continue to build upon the successes of 40 years of past ICDS scientific programs, the Chicago meeting is designed to address the interests of all of those affected by celiac disease and gluten-related disorders – from physicians and researchers to patients and clinicians to family and friends. The ICDS Chicago will present two distinct interactive educational tracks. The meeting will bring together the world’s top scientists and physicians to discuss the most recent scientific advances in managing and treating celiac disease and gluten-related disorders while a separate clinical forum will be held to further educate dietitians, clinicians, and patients.“

It’s impossible for me to share all the information I learned today into one blog post so I am going provide some information based on the major points of the discussions. If you head over to Twitter and do a #ICDS2013 search, there are hundreds, if not thousands, of tweets from the event that will blow your mind!

Here are some great things I learned today:

  1. We are not born with celiac disease. Genes, yes but the actual disease can develop at any age or stage of life.
  2. Women are diagnosed 2-3 times more frequently than men.
  3. When a biopsy is done, advocate and ask for 4-6 biopsy samples to be taken during the procedure. 2 is simply not enough.
  4. There is a major lack of follow-up with doctors and celiac patients – patients must advocate for their health and not only see their doctor for follow-up appointments, but work with a registered dietitian to ensure proper nutrition is being received by the celiac patient. There are inadequate follow-up visits, no assessment of compliance with diet, no follow-up biopsies are being done and inadequate f/u serology testing.
  5. Gluten alters bowel function in patients with irritable bowel syndrome if they are positive for the HLA-DQ2 or HLA-DQ8 gene but do not have celiac disease.
  6. Just because you have the HLA-DQ2 or HLA-DQ8 genes, it does not mean you have celiac disease.
  7. Celiac disease is seriously under diagnosed in men.
  8. There is not enough information to diagnose non celiac gluten sensitivity and no reliable information is available to determine how many people may be affected by this because screening is unknown as well.
  9. Small Intestinal Bacterial Overgrowth may be a problem in people who have similar symptoms as IBS or Celiac but aren’t diagnosed. There isn’t a lot of research on this but a hydrogen test is available. (Actually, this test is something I have at my house to take next week when I get back from the conference)
  10. A gluten-free diet should never be started prior to ruling out or being diagnosed with celiac disease.
  11. Doctors are still recommending a gluten challenge for people who have been gluten-free on their own merit or for other reasons and then need to be tested for celiac disease.
  12. If you have a first degree relative diagnosed with celiac disease, you should be tested.
  13. Support groups for children and adolescents are the best way to help them cope with their diagnosis. If you can’t find one, create one yourself. Sometimes we need to take these matters into our own hands in order to help the kids.
  14. Osteoporosis normalizes within 3 years of following a gluten-free diet of people with celiac disease.
  15. Failure to adhere to a gluten-free diet will cause continued bone density loss and contribute to osteoporosis.

The 4 out of 5 Signs Rule for having celiac disease – you should have 4 of 5 of these done in order to diagnosed celiac disease:

  1. Presence of signs and/or symptoms compatible with celiac disease
  2. Positive serology testing (TTG +/- EMA)
  3. Compatible HLA genes (DQ2 e/0 DQ8 positive)
  4. Positive internal biopsy with enteropathy (damage) typical of celiac disease
  5. Resolution of symptoms with a strict compliance with a gluten free diet

In total, my mind was filled with information and excitement to not only learn about celiac disease, but also to have safe foods to snack on and enjoy for 3 full days. Stay tuned for more information from tomorrow and Wednesday!

 

It’s okay to be in a funk!

Funk.

I. Am. In. A. Funk.

I’ve  been traveling a lot lately and I think it is starting to take a toll on my body. There is this funky feeling I haven’t had for quite some time now and I don’t know exactly how to put my finger on it.

I just feel off. Not on my A game.

Am I worried something might be going on with my body? Absolutely.

Do I think it’s probably a combination of stress, anxiety, traveling, how busy I’ve been and just generally trying to keep my head above water? Yes.

If you are reading my blog, you know all about feeling “off.” That feeling you get when something isn’t right and you aren’t quite sure if it was the food you ate, how you are sleeping or something internal. Ever since I was diagnosed with celiac disease and endometriosis, I think I am much more in tune to my body than every before. I pick up on patterns now and realize things much faster than before. But even now, I still get stumped by things.

My weight keeps on increasing despite attempts to get back on the fitness program. I know I’ve been snacking more lately and drinking alcohol more than normal but not to the point of where my weight is now. I recommitted to myself 4 days ago and am on the right track. I’m motivated and ready to go. So, then why have I had a migraine for 3 days? It’s like there is always something to get in the way lately and I haven’t been in the mood to push through it.

Sometimes I am hard on myself. I’m in the fitness industry, I own a gym and I write fitness articles so I assume I should look the part. But, on the flip side, I have a few chronic diseases that people can’t see which control my body in more ways than one. It’s frustrating. I’m frustrated. Actually, my therapist last year said that “frustrated” is just a nicer word for anger. Which is true, I am mad at myself and my body today.

I think it’s important to share my feelings on good days and bad days for all of you to know I’m not perfect (as much as I’d like to think I am though lol). I go through those periods where it just seems like everything goes wrong and you just want to watch TV all day. I’m trying now to pull myself out of it and it’s tough but I can do it. Last night the last thing I wanted to do with a headache was do a workout, so instead I took the dog for a walk. He enjoyed it and his happy tail wagging helped me with my mood. Aaron even came out with us last night and did a tour of the neighborhood. It was nice.

I’ll get through this! I know I will. I want you to know you will too. If you feel like you’re in a funk and just can’t get out of it, that’s okay.

Sometimes, we just need to hit the restart button.

I have a ton of stuff going on in my personal life that I can’t talk about publicly yet (all good stuff!) but they are major life changes (no I’m not pregnant) and have consumed a lot of my time and life the last few months. I need to pay attention to everything wonderful in my life and just keep treading water until things get better!

Conquering Self Doubt

decisiontotry

Self doubt. I’m not immune to it. Some days it completely fills my thoughts.

Tackling a major project can seem so difficult. The goal looks so far in the distance and completely out of reach. It feels like you are never going to get to where you want to go. I started writing my book about 2 months ago and finally submitted it to my editor today!

Talk about time-consuming and feeling like you are never going to get something done. I’m celebrating at the park where I’ve been writing my book for the last few weeks and just enjoying blogging without feeling guilty for not allocating this time to writing my book. I apologize for the sporadic blog posts the last 2 months, but when you take on the project of writing 60,000 words for a book, its tough to keep going for a blog post. But, I didn’t forget about you, I promise!

When I took on this book writing project, I knew it was going to be difficult. It was doing to be hard. I went deep into my own life to share my rock bottom stories with you and how I moved on to see another day. A better, more positive day. I can’t wait to get this book to print!

Everything I read said “write every day.” And, I did. Even if it was 300 words, I added to my book every. single. day. The days added up and so did the words. I submitted the book a week later than planned. But had I turned it in last week, I would have been sub par at best. I needed more days and more time to fine tune it. I’m so glad I took that time. Although it’s just my rough draft, I’m happy with the first result.

I honestly doubted myself the entire way through this process.

Could I write this book?

Who will read this book?

Who cares?

I started Pretty Little Celiac with the same doubts and look where it’s grown to this day. If I gave up a year ago, we wouldn’t know each other and you wouldn’t be reading this blog! I’m writing my story to tell how I overcome adversity to live a happy and full live. I share my deepest and darkest secrets from my life to help you heal and move on – I swear, I am sharing EVERYTHING.

Make sure you sign up for my newsletter to stay up to date on the status of the book. It’s set to come out mid-October, just in time for my speaking engagement at the Food Allergy Blogger Conference in Las Vegas November 2-5.

Of course, I’m already planning my celiac book for summer 2014!

Thank you for sticking with me and sharing your stories! It pushes me to work harder and help even more than I already do

 

Recipe: Clean and Gluten Free Rotisserie Chicken

chickendinner
Clean Rotisserie Chicken

Maybe I should have called this Fauxtisserie Chicken because it tastes like it but without cooking it the same way!

I’ve been pretty bored with our options lately at home and feel a rut coming on with dinners. In order to stop it, I found some ideas for clean gluten-free dinners and I’ll post them as we go each week. The first one was a home run and I’m thrilled to tell you about it!

I wanted to get a rotisserie chicken but I think we need to open our eyes to the hormones in those chickens and fillers to make them so cheap at the grocery stores. I guess technically this is a baked chicken but it looked and tasted just like a rotisserie so I’m going to call it that!

So, I ran over to Trader Joe’s to see what they had in the store that day. I found a small, organic, young chicken which weighed about 4.5 pounds. A little big for Aaron and I but I figured it would make great left overs.

Here’s how I made it

Ingredients

-Small Chicken – preferable hormone free and organic
-4 Tablespoons of coconut oil
-2 Tablespoons of fresh rosemary
-2 Garlic pieces – chopped or minced
-3 Tablespoons of unsalted grassfed butter – we use Kerrygold
-2 Tablespoons of lemon juice

  1. Preheat the oven to 350 degrees
  2. Clean the chicken with water and then put it in an oven save dish or roasting pan. I used a clear pyrex baking dish because that’s all I have to work with.
  3. In a small saute pan – I threw it on low heat and mixed the coconut oil, garlic, rosemary, lemon juice and butter for about 5 minutes to let the flavors mix together
  4. Once the chicken was clean I put it in the glass pan and grabbed a marinade brush to rub the dressing all over the chicken making sure it covered the whole surface and I poured the rest inside the chicken.
  5. Cook the chicken for 25-30 minutes per pound. My 4.5 pound chicken was done in about 75 minutes
  6. We let it cool for about 1o minutes prior to cutting
  7. It was served with broccolini that I baked and threw some kerrygold butter on after taking it out

I was delightfully giddy when my husband cut into the chicken and the juices streamed into the pan. I don’t care for the skin but it was crispy as you can see from the picture! It was amazing. It’s  very rare I venture out to try new things like this but I must say this was a home run. Something I will make in the future. It only took about 15 minutes to get ready so the cooking time took the longest.

Gluten Free Pizza Delivery? Just Call Donatos!

Donatos Gluten Free Pizza
Donatos Gluten Free Pizza

Gluten Free Pizza Delivery? Just Call Donatos!

Just a few weeks ago, I sat in my office with Laura and told her one of the things I miss the most about living gluten-free is the ease of just being able to order a pizza. For once, like the old days, I want to call a pizza place and have them deliver a safe, gluten-free pizza. It seems just a few days after this conversation, Donatos Pizza emailed us to work with them on launching their new gluten-free pizza with Udi’s gluten-free pizza crust.

I went to a meeting at their facility here in Columbus and actually was able to meet the chef that helped create this line for them. Her son and husband have a gluten sensitivity and their family is gluten-free. She presented the idea to Donatos and they decided to run with it. Now, here is the best part…

The take and bake frozen pizza’s are on Udi’s gluten-free crust and created in a dedicated gluten-free facility. However, Donatos offers two different ways to get their gluten-free pizzas.

If you go to the store or order one for delivery, you can get one made and cooked for you in the store. However, this option is typically only good for people with a sensitivity because there is a high risk of cross contamination. I mean it is a pizza place! They can’t be sure 100% of all surface areas are perfectly clean and sanitized so they want to make sure people are aware of that before ordering.

But, what if I told you there is a second option. A better option. An option every celiac has been waiting for….

Picture this…. Your family is over for a party and everyone wants pizza. You decide to call Donatos and place an order. While you are on the phone with them, you walk over to your oven and preheat it to 425 degrees. Then you order a FROZEN gluten-free pizza – free from cross contamination and cooked in a dedicated facility and when it arrives, you pop it in the oven for 11-14 minutes and are able to enjoy a pizza night with your family? You can order a cheese or pepperoni frozen pizza! Now, because of cross contamination issues, they cannot bring you extra toppings to put on your frozen pizza, but that doesn’t mean you can’t add your own at your house!

Well, the wait is over folks and this is now a reality! You can now have this pizza delivered to your house and safely enjoy it with your family!!!

Donatos Gluten Free Pepperoni Pizza
Donatos Gluten Free Pepperoni Pizza

If you are in the frozen food section of your grocery story, look for the Sonoma Flatbreads by Donatos. They have a gluten-free line also and are just as good as the Donatos gluten free take and bakes. We found them at Raisin Rack and Kroger grocery stores but they are quickly expanding, so be sure to check your frozen food section next time you are at the grocery store. You can also contact them online and see where you can find one near you!

Sonoma Flatbread
Sonoma Flatbread

Donatos gave me one of each pizza to try & I must tell you they blow the competition out of the water as far as gluten-free pizza. Especially the Donatos gluten-free take and bake. If you want something that tastes like regular pizza, then this is the one for you. Make sure you check with your local Donatos before ordering to ensure they have them in stock!

If you live around central Ohio and want to try them, Donatos is sponsoring my BlogDay Party on August 29th! Click here for more information or to RSVP!

Come to my BlogDay Party!!
Come to my BlogDay Party!!

 

Gluten Free Sausage and Wild Rice Recipe

Gluten Free Sausage and Wild Rice Recipe
Gluten Free Sausage and Wild Rice Recipe

Gluten Free Sausage and Wild Rice Recipe

Last night I made a random gluten-free version of a jambalaya with a few things we had in our kitchen and it turned out very clean and tasty! Who knew whole foods could taste this good and be this easy?

Ingredients:

1 cup Wild Rice
3 Trader Joe’s Jalapeno Chicken Sausage (yup they are gluten-free!)
1 cup Mushrooms
3 cloves Garlic
6  total of small red, yellow & orange Sweet Peppers
4 tablespoons grass-fed Butter
2 tablespoons of Olive Oil
2 cups Spinach
1 can Cannellini Beans

 

How to make:

  1. Make 1 cup (dry) wild rice. I mixed it with water but you can also mix with gluten-free broth to add some additional taste.  It takes about 45 minutes to cook so make sure you get in on the stove in advance.
  2. About 30 minutes after you put on the rice – Grab a sauté pan and put 4 tablespoons of butter, 3 cloves of fresh garlic, 2 cups of fresh spinach, 6 small sweet peppers chopped into bit size pieces, 1 can of navy beans, 1 cup of mushrooms and 3 sausages cut up into bite size pieces. Mix them all together really well and throw the lid on it for about 10 minutes.
  3. When the rice is done, make sure all the liquid is drained and mix the rice in the sauté pan. Be sure to mix all the ingredients in very well. I threw in a little bit of garlic salt to add some extra flavor.
  4. Perfect for lunch leftovers! Enjoy
Trader Joe’s Spicy Chicken Sausage
Trader Joe’s Spicy Chicken Sausage