Eating Gluten Free in Hilton Head South Carolina – Traveling with Celiac

Gluten free in Hilton Head Island, South Carolina!

How do you travel with celiac disease? I found it’s not very easy, so I obviously was leery on our first trip to Hilton Head for a week. Fortunately, our hotel had a kitchen in our suite as we own a timeshare with Marriott Vacation Club but even so I didn’t want to be stuck eating in the hotel the entire trip. Eating gluten free in Hilton Head was much easier than I thought it would be!

I decided to chronicle our trip to help you if you ever decide to head over to Hilton Head! This will be a great guide for those of you looking for safe places to eat, or wondering if a place you wanted to go is a good pick. 7 days worth of dinners and lunches there is bound to be something for everyone on this list.

Marriott Grand Ocean – 

51 South Forest Beach Drive · Hilton Head Island, South Carolina 29928

Dolphin Grille – located outside of the pool in the middle of the resort – this little place to eat is full of fried foods. If you want French fries and fried anything, this is the place to go. They also offered smoothies and salads but from the look around me – no one was enjoying the healthier items. Since fried foods have been off my list for sometime now, just the smell of the grease makes my stomach uneasy. I stuck with a grilled Mahi Mahi salad. It didn’t make me sick but it didn’t make me feel good either. It made me worried about cross contamination and I didn’t feel safe eating here.  This was the first and last time we ate at this grille. It’s a shame because it was the only restaurant on the property.

Marketplace – For being a huge billion dollar corporate company, you would think that the Marriott Company would be more sensitive to allergies and food needs. But nope, they failed at this yet again. The Marketplace is a little grocery type store to find essentials and they have some snacks at their pizza place. Again, nothing gluten free or lactose free, well unless you wanted candy or chips. There was no air conditioning in this little space so I’m sure any fresh fruit would rot quickly. If you want soda, macaroni and cheese, brownie mix, chips or pizza – this it the place for you. I left very disappointed that I couldn’t even grab a snack at the hotel. My suggestion for Marriott is to consult with some allergy awareness groups to come up with some perfect allergen free picks for their store. I’m sure something gluten free would be atrociously expensive, since a drink was $3 but people will pay a premium if they can’t find anything else nearby.

Wise Guys Steaks and Wine Bar– 1513 Main Street  Hilton Head Island, SC 29928

First place we went to after gluten free Hilton Head Internet search. They have “gluten” spelled wrong on their website, which might contribute to not being able to find them on the Internet? It’s a shame because this was the absolute best gluten free meal I’ve ever had. The Caesar salad with grits croutons knocked my socks off and the steak was so tender and delicious. I salivated all week for another meal there. The skillet potatoes were delicious as well. Because I now have the lactose allergy, I couldn’t indulge in desert but my husband had a molten lava cake that he said was fabulous. Lots of wine selections. Very modern décor and feel inside. My husband didn’t like the mirrors all over the walls but I thought they were cool. This dinner hot spot is not a place for kids. Pretty good wine menu also for all us legal drinking age adults!

Check them out on Find Me Gluten Free

Check out their Gluten Free Menu Online

The Crazy Crab – 149 Lighthouse Road, Hilton Head, South Carolina

The waitress had no idea what I was talking about when I told her I had a gluten allergy. I should have known better from the menu with entire entire thing filled with fried foods. I didn’t feel comfortable eating anything there due to possible cross contamination in the kitchen and lack of knowledge from our waitress. I ended up ordering the crab legs and corn on the cob. Well the corn on the cob was completely watered down; I think I had 2 bites. The crab legs were lack luster and didn’t fit the name of the restaurant. They left little to be desired and I was not impressed. This place is in the Harbor area and it is one of the touristy places on the island. I couldn’t recommend this place for gluten free folks. and for that matter, I wouldn’t even recommend it for people without food allergies.

Truffles Café – 71 Lighthouse Rd, Hilton Head Island, SC 29928

After finding this place on the Gluten Free Find me app, I had high hopes since people posted about their gluten free items being so good. They did offer gluten free pasta and breads but I just wasn’t in the mood. I’m finding that the gluten free pastas/breads leave me hungry and wanting more food. I decided to try a filet again. I was a bit disappointed in this one. The steak was fine but very bland, along with the garlic mashed potatoes. The spinach with it was really good not soggy and had good flavor. It almost seemed like they were afraid to flavor my food for fear it would have gluten. My husband had the mango salmon and said it was the best meal he had on the island. I guess it might just depend on what you order. They were the only place that offered a gluten free desert and it was delicious. Hot, gooey and delicious. A little mini lava cake without the lava and ice cream on the side. I felt this meal was more expensive than the others and for no real reason. Oh and I did have a “peartini that hit he spot! There were pros and cons about the meal. Have you eating here? Please let me know!

Check out their other review on Find Me Gluten Free

One Hot Mama’s – 7A Greenwood Drive  Hilton Head Isle, SC 29928

Monday night football – we had to go somewhere that had the game on! Typically sports bars are the last place you want to go if you have celiac. Tons of fried foods! I will say this place had several good options. I ended up with the beef brisket salad. Ahhmazing. The beef brisket was so tender and the meat was flavored nicely. No fatty pieces on the meet and the salad lettuce was fresh. They also said their wings were gluten free, which means they must cook them in a separate fryer than the regular fried foods. Highly recommended for a cheap bite to eat in Hilton Head! Aaron had tacos and really enjoyed them as well.

Did you eat here? Leave a review on Find Me Gluten Free

Black Marlin – Located dockside at  Palmetto Bay Marina 86 Helmsman Way, Suite 103
Hilton Head Island, SC 29928

Best crab legs I’ve ever had by far. They were big, juicy and had lots of meat. I could tell they weren’t soaked in water or over boiled. Cooked perfectly. I was starving and inhaled them. I just wanted more and more of them. Aaron said I had a ravenous look in my eyes and at one point was double fisting crab legs and green beans. It was a sight to be seen. The green beans were crispy and tasted great. Nothing special about the baked potato, it’s really hard to screw them up. Aaron had some fried shrimp tacos and raved about them. For desert, he had a molten chocolate lava cake and I watched him eat it.

Did you eat here? Leave a review on Find Me Gluten Free!

 

Skull Creek Boathouse – 397 Squire Pope Road,
Hilton Head Island, SC 29926

The last stop on our trip. We stopped here on the way home for lunch. I couldn’t decide what I wanted and we had a $50 voucher from taking the timeshare tour so we ordered a bunch of different things. We started with chips, guacamole and salsa. In hindsight, I didn’t ask if they cook the chips themselves or if the guacamole was gluten free. I ended up sick before we left the restaurant. Not their fault, mine… Seriously not a smart move before a 12 hour car ride back to Ohio. I didn’t ask. The sushi roll was very good – smoked salmon, cream cheese and cucumber. Then Aaron and I shared crab legs again. He ordered the snickers cake for desert, and once again… I watched him eat it.

Did you eat here? Share it!! Find Me Gluten Free

HAHA Ok – We found this little guy on the beach but we didn’t have him for lunch….
Overall, I found several gluten free options in Hilton Head and didn’t have many problems going to different places. I will say we focused on the SERG restaurant group because they all had gluten free offerings and educated staff, a heart warming thing for all of us with Celiac. Not only do they have a ton of places to eat on the island, they all have different events and themes.

Do you have a hot spot in Hilton Head for gluten free options? Do you live on Hilton Head Island and have Celiac? I want to hear from you – email me at prettylittleceliac@gmail.com and tell me the best places to go so next time I can be sure to check them out…..

Be happy, Be Healthy-

Rebecca

The Pretty Little Celiac

Comments

  1. Delia Raine says:

    HI,
    I am off the Savannha and Hilton Head May 17 and I will be using your reviews to find some places to eat. We will cook alot too at our time share as I always find that safest. I have been celiac since Dec 2011 and travelling is alway hard. I starve or get sick with out careful research and good resturant education.
    Thanks for the tips.
    Delia

     

    • Rebecca says:

      We had a great experience on Hilton Head Island – I found a lot of places to get gluten-free food. I can’t wait to go back there this fall.

       

  2. Alison A. says:

    Hi! I am going on vacation in about 2 weeks to Hilton Head with a day trip to Savannah, and weekend in Charleston. This will be my first vacation since I found out about my Celiac this past Christmas. I am oh so worried but very excited I found your page. I am still getting use to it and can’t wait to try some of these places out.
    Alison :D

     

  3. Jen P. says:

    I’ve been going to Hilton head for 25 years but only have known I had celiac for about 3 years. Thanks for this posting! I’d like to try a few of these (and avoid others!). I’ve found that Old Oyster Factory has been very accommodating although I can’t remember if they have a gluten free menu. Also, One Hot Mama’s is the best for celiacs!! Loved it there! Mellow mushroom has gluten free pizza and I think they have gluten free beer too! Also, lots and lots of other beer on tap! Fresh Market (I think that’s what it’s called) has lots of gluten free snacks or things to pick up for your house/room! I’m going there this Saturday, so if I find more great places, I’ll report back!!

 

 

My First Pretty Little Celiac Giveaway~~

entertowin

Because Pretty Little Celiac has become so popular in such a short amount of time, I’ve decided to run my very first PLC contest!!!!

I want to hear from you….

Ok – obviously no one wants to talk about humiliating poop stories, I guess I’m the only one that finds interest in that….

I’m going to change the contest!

Please write me an email and tell me your gluten free or celiac story….

How did you find out? What symptoms do you have? How many doctors did you go to?

Trophy Husband and I will pick a winner.

Rules of the contest:
1. You must like the Pretty Little Celiac Facebook page.

2. You must follow me on Twitter @prettylilceliac

3. You have to submit your story to me by Email no later than midnight on Friday, September 21, 2012. Prettylittleceliac@gmail.com

What will you win? Great Question!

1. A feature on my blog as a guest blogger with your story. You can even keep it anonymous (the stories might be better that way)!

2. A $10 gift card to Amazon.com

3. A copy of Living Without Magazine

Good Luck!~

My wife is the Pretty Little Celiac and this is our Celiac Journey…

The Trophy Husband

Diaries of the Pretty Little Celiac’s Husband

“Watch the cart” This is the first thing that comes to my mind when I think of Rebecca and her relationship with food. There are too many times to count when we would be speeding home from a night of eating out, screaming at me to go faster or she was going to “bleep her pants”. One time in particular, I had marks on my shoulder when she was grinding her nails into my shoulder as I was turning the corner, coming into our sub-division. We were forced to stop behind a car of an elderly couple who seem to be lost and to my dismay going under 10 miles per hour. I can’t even count how many times this happened. For a while, we would go to the grocery store immediately after eating out. Within 5 minutes of arrival, somewhere between the produce and bakery (rather ironically), she would eventually tell me to “watch the cart’, and she quickly walked to the restroom to ‘check out the facilities’. What was tough for me to understand was the relationship between what she was eating and her sometimes explosive reaction to the food. She would have what we thought was a very healthy dinner, chicken, veggies, whole wheat bread… explosion.. Then we would eat something that would be considered bad or greasy, like cheese fries or nachos loaded with cheese, and nothing. It was like trying to dodge land mines, but they were invisible or at least mis-labeled.

I Have Allergies too!
To give this some perspective,I have always had an allergy to nuts, more specifically, tree nuts. I have been to the emergency room about a dozen times in 30 years. If I have something with nuts in it, I have an immediate reaction. My reaction is much more severe than what Rebecca has with gluten. Certain nuts, if I ingest enough of them, will swell me up to the point where I will not be able to breathe, and die within minutes. Other nuts will give me hives so bad that I become almost unrecognizable. That being said, I find my allergy much more manageable than having celiac. Why? I pretty much know what food has nuts and what doesn’t. Nut allergies are well established in the manufacturing industry the labels on food are done in a way where there is no ambiguity, which I think has to do with the severity of the allergy. If someone eats a product that has nuts but it was not on the label, and dies, the lawyers come in. In the case of Gluten, if gluten is in a product and it says it is ‘Gluten Free’ and it irritates my stomach, it is pretty hard to sue for that. How could you prove it? I can’t even picture how that would play out in court!

In restaurants, it is very easy to find out what has nuts and what doesn’t, most of the time you can see them and there are well established foods that I know to stay away from.. IE Chinese (cooking in nut oils), desserts with walnuts, pecans , cashews…. For gluten, it’s not that straight forward, even to the most veteran celiac. We typically get looks of confusion if Rebecca asks if an item has gluten or not. Sometimes the quick response of “no’. That is even more concerning, since it is hard to determine if the waiter waitress is truly understanding the question. Lastly, the reaction to the gluten is not as automatic as the nut allergy. I am so sensitive to the nuts, I can of just smell them in the food and know. One bite (not even swallowing) and I immediately know. With gluten, sometimes it happens hours later or at times…days…so there is no immediate feedback. The gluten reaction can also be days in length, and can be one of many things for Rebecca. Mostly notably multiple trips to the bathroom. I know way more about her poop then I would ever care to admit.

More than that, it negatively affects her mood, her joints and at times our relationship. Damn you gluten!

The Experiments
Now that she has found out, initially there was a sense of relief. However, quickly a hard realization. Things that she loved to eat were slowly poisoning her. It has been tough. It is tough for me to find the correct way to support her in these struggles. I am a problem solver at work, however, in my experience with Rebecca, it is best to give her unconditional support and someone to listen to ,as opposed to offering any solutions. I don’t have to live with this condition, and I am learning along with her. I don’t have to live with the mistakes or mis-steps that happen along the way. The first few months she stuck to the four of five things she liked and could eat…but those would quickly come and go… Chipotle for a month, then Noodles and Company… then Annie’s Gluten free Mac and Cheese. Trips to gluten-free bakeries, gluten-free bagels, pizza.. some of it will disintegrate in your month… some of it was actually better than the gluten-free product, but you always pay 2x as much for it. We continue to find things we like, and don’t. Rebecca is very vocal either way.. no ambiguity.

How it affected me and my own weight struggles…
One unintended side effect of the discovery that Rebecca had gluten, was that it had positive effects on my health. To be supportive, and also because  I didn’t want to make two different meals (yes, I am the cook in the house), I began eating mostly gluten-free. I have struggled with keeping my weight down, and in the past I combated that with working out more and eating less of the foods I really enjoy! I was smack dab in the middle of one of my most ambitious cycles to get in shape. I was working out, sometime 2x a day, and I was actually gaining weight. The I had started to eat the gluten-free diet, again, the reason of convenience and sanity. I first noticed more energy in the afternoon while I was at work.

Before this, energy from caffeine was the only way I could get through the afternoon. But after eliminating the majority of the gluten in my diet, I was feeling more energetic and didn’t feel I needed caffeine in the afternoons. I began to feel as if there was something to this. I have now embraced eating this way, as well as more small improvements, and have lost 27 pounds in 12 weeks. I am working out less than once a week and not counting calories! My body seems to respond better to not having gluten, and I have never felt better and more energetic.

How I am trying to help…
I listen, I empathize and I learn. As mentioned before, I was not familiar with Celiac disease and gluten. In fact, my knowledge of truly good nutrition was greatly out of date. I have spent the past 5 months researching nutrition and in particular how it affects us on a daily basis. There are great resources on the internet. I particularly like some podcasts I have found on iTunes (search the ‘Health’ category). I listen to these on my to work or when I have the time. Rebecca and I have listened to them on the way to and from some our trips and we have found information that is consistent with what she is experiencing. Cooking for Rebecca continues to be a learning experience. We are constantly trying to find ways to cook the foods we like in a gluten-free manner. Sometimes is works, sometime it doesn’t, and we have to eat the failures. I know immediately if Rebecca doesn’t like it, and we now have at least a few things we can eat consistently. For the most part, we don’t eat out, and when we do there are specific restaurants we target.

What’s next?
We continue to try to find ways to have a lifestyle that we both enjoy. We have had many ups and downs.. mentally, emotionally, physically.. those won’t stop, at least not in the short-term. We are doing it together, but we stumble. She has to live with her body and it’s crankiness, but I see it getting better, although some days there are setbacks. We now celebrate eating out and not getting sick, we celebrate finding a pizza crust that is close to what she used to experience. We celebrate normal bowl movements… yes I said it.

Rebecca started her blog to help people find those little celebrations, to dodge the pitfalls she has found, and to inspire those who have this disease. She is also are looking to collaborate and learn from those who are fighting to maintain a normal and happy life. One day at a time, one meal at a time, we will get there.

Aaron

 

 

  • Becky

    It was as if you were writing about my life! Thank you.

     

    • PrettyLittleCeliac

      You are so welcome! Thank you for stopping by and I just plan on posting more and more…. Stay tuned and let me know if you’d like any specific blog posts…
      Rebecca

       

  • Victoria Rutigliano

    I have a VERY similar story as well. It took years for me to get diagnoised. So great that you are spreading the word to help others. This is a great website.

     

    • PrettyLittleCeliac

      Thank you Victoria for stopping by and I’m thrilled you enjoyed my website. That was the whole point in doing it to educate people. Did they say you had irritable bowel syndrome too?

 

Gluten Free Review Outback Steakhouse

Outback Logo

We started our road trip Thursday night and ended up at a Courtyard Marriott outside of Charlotte. In the car, I took a bunch of snacks with me but there is only so much snacking you can do before you want a real meal. Thankfully, there was an Outback Steakhouse right next to our hotel.

The hostess got me the huge gluten free menu and I was in heaven. So many options! I didn’t know what to order. I knew I wanted a lot of protein since I didn’t have much throughout the day.

menu_outback
The waitress brought Aaron bread and he joyfully devoured it right in front of me :( She said she saw that we only had one gluten free menu and didn’t want to leave the hubby out.

bread_outback

My dinner was the mini filet with the shrimp and a baked potato. The filet was cooked perfectly and the baked potato had the perfect amount of crispiness to the shell that I love. In hindsight, I should of ordered some veggies too while we were there but I’m on vacation and I am going to eat whatever I can that’s gluten free!

I’m not a huge fan of sauces and didn’t try them. I just  like to enjoy my meals plain.

meal

Another great thing about Outback Steakhouse is their connection with their fans on social media. They tweeted me back within 10 minutes and re-tweeted my tweet at 10pm on a Thursday night. That’s great customer service!

I’d highly recommend Outback if you are gluten free or gluten insensitive. They are educated on gluten and have an extensive menu to accommodate your needs without making you feel like the odd man out.
Rebecca

Comments

  1. Eve says:

    what does gluten “insensitive” mean…. I’m sure you meant gluten sensitive…which means GLUTEN INTOLERANT!! This is not a walk in the park, I have gluten intolerance, and didn’t know what was wrong with me and it caused my Graves Disease. I was first diagnosed with RA, 20 years ago but that wasn’t what was happening to me, I had no symptoms of RA, but that had to be when the antibodies first showed up in my blood and the medical profession just didn’t know what it meant. It meant that I was developing Celiacs…and if I’d known it 20 years ago, (maybe) I wouldn’t have developed Graves. I also have lactose intolerance and allergy to eggs…my diet is IMPOSSIBLE if I eat out of my house!! I hope you find your way and starting a blog should help as you will get a lot of input and experience to help you along your new life! Good Luck and good eating.

    • PrettyLittleCeliac says:

      Eve! Thanks for the catch, I will fix that right away. My fault for not proof reading but at least I know someone is reading my blog.

      What a long journey you’ve had with the Graves and RA. I can’t even imagine. Hopefully with education and people sharing their stories, we can help people going for years without symptoms being linked to the root cause of celiac or gluten intolerance.

      Rebecca

       

  2. Megan says:

    Rebecca.. thank you for this entry… Gluten intolerance has been added to an already complicated diet….so this was great to know that Outback is “Megger’s” friendly. Keep up the good work…

     

  3. kathy says:

    We have had great experiences at out local Outback. The waiter was on top of everything! He even thought to ask the kitchen for some GF bread for my husband to enjoy while we all got the regular loaf.

     

    • PrettyLittleCeliac says:

      Do you normally get steak there? They are very active on Twitter and Facebook – so let them know you loved it!

My Earth Fare Gluten Free Grocery Cart Items

Gluten Free Items
Some of my favorite items

Some of my grocery staples are watermelon, carrots, corn on the cob, raspberries, Rice Dream milk, Tinkyana Rice Pasta, califlower, fair trade coffee, lara bars, gluten free pretzels and of course our meat for the week.

ricecream
Gluten/Lactose Free

I tried this “rice cream” the other day and I’m not sure if I liked it or not. It had a very distinct flavor to it and looked very thick and not in a creamy delicious sort of way. The flavor is very sweet – even more so than regular vanilla ice cream and it left an odd after taste in my mouth. I thought having a “new and improved” taste would be a good thing….

Rice_Purple_Jasmine
I haven’t tried this yet but I thought it looked interesting. Fair trade rice. I’ve never had purple jasmine rice! Have you ever tried this? Leave a comment below and let me know how it tasted!

dark chocolate rice crunch
Gluten free and dairy free chocolate bar! I usually eat 2 or 3 pieces of chocolate a night so a bar usually lasts me all week. Tastes fabulous!! Just like a regular chocolate bar.

rice_dream_drink
My go to milk substitute. It isn’t too think like almond milk but has a much better normal milk taste to it. I won’t drink my shakes or cereal with anything else. It sure is nice to finally have something that doesn’t make the feel pregnant or get sick after eating. Great source of vitamin D.

larabar

My husband has a tree nut allergy so he can only eat the ones made from just peanuts. Lara Bars are my bar of choice when I need a snack on the go. My favorite flavor is apple pie but I think they have about 20 different flavors. You can find them at almost any store, except Target seems to have an extremely small selection.

salmon_rub
Gluten Free salmon rub – we are trying this tomorrow night on our Wild Alaskan Salmon purchased this week at the grocery store. I will let you know my review after we have dinner!
Do you have any staples you get each week for your gluten free lifestyle? I’d love to hear about them…
Gluten Free 4 Life-

Rebecca

Gluten Poisoning Symptoms and Recovery

It’s 2 am on September 3rd, 2012 and I am wide awake with a horrific stomach ache. It started after my lunch out today at a local restaurant known for having a “gluten free” menu. My review is coming up this week but if you have celiac or severe gluten intolerance I would avoid it at all costs.

Gluten poisoning. What to say about gluten poisoning? It is awful. Just dreadful. Miserable.

Imagine having a stomach virus that gives you diarrhea along with a brick like feeling in your belly without being able to think or sleep. Eating gluten frequently causes a “brain fog” which is similar to having lack of focus. Primarily for me its because I just keep thinking about the horrible pain in my belly. It’s crippling.

The longer I go without gluten in my system, the worse the symptoms are when I do consume the little jerk. I can feel it in my joints. As I type this email, my fingers are throbbing. I can feel my heart beating in my stomach. My head pulsed all day from a low level headache and now I’m wide awake with insomnia from my stormy gut. My stomach is so bloated I look like I’m 4-5 months pregnant.

This is an allergy. My husband is allergic to tree nuts and swells up with hives and could die. My allergy is a slow painful death. Celiac causes tons of other problems for people including hypertension, hypothyroidism, heart complications, behavioral problems, sleeplessness and even cancer. For years I’ve lived with numerous under lying symptoms of celiac but because I ate it every day, my body was in a constant state of turmoil which apparently I just came to adjust to and go on with my life.

Gluten poisoning is different. Instead of a little stomach ache all the time, this is one big, giant, crippling stomach ache that lasts for 2-3 days.

Several weeks ago we went to a Cincinnati Bengals game and kept walking by the concessions with the fresh, hot soft pretzels. My total weakness. My favorite food. I could eat them every single day.

I rationalized eating one that we usually go to 2-3 games per year and if I just let myself eat 1 pretzel at the games, I would satisfy my craving of foods I’ve been forced to deprive myself of for months now.

I ate the pretzel. It seemed like the most delicious pretzel I’ve ever consumed. I ate it in the most miniscule bites to make it last what seemed like forever. It was so good.

An hour later, I was fine.

2 hours later, I was fine.

This was exciting. I beat the system! I could enjoy a pretzel every once in a while and be fine.

Boy was I wrong…..

3 hours later we were about 10 minutes from home and I could feel it. My stomach started to gurgle. My head started to sweat and my heart started pounding. I know that feeling and we had to get home quick. I ran in the house from the driveway to use the restroom. Just like old times I thought to myself. Oh well, I can handle it. I lived with it for 15 years.

Little did I know what was going to happen that week. Friday night was the game. Saturday I felt like a freight train hit me. My fingers were totally swollen and my joints ached. I was exhausted and had a horrible stomach ache. Sunday was just as bad. Monday, Tuesday Wednesday – by FRIDAY I started to feel better. It took me a full week to feel back to normal. I ate fruit bars for almost the whole week. No appetite. Frequent restroom trips. It was just awful.

This was the first time I purposefully ate gluten since February. I’d gone 6 months without consuming a large amount of gluten. I’m sure I’ve had some in the mean time with cross contamination but nothing like this.

The only thing that seems to make my stomach feel better is the natural sierra mist. There is no amount of medicine, vitamins or foods that make your stomach feel better after being poisoned. You just have to stop eating gluten again and wait for your body to heal. Just take it one day at a time. If you have to rest, you have to rest. It’s very similar to having the flu. Your body will tell you when it is time to get back to the normal routine.

I’ve been reading all these things on the internet in blog posts and random other websites. They don’t work. Waiting it out and resting works. Drinking soothing tea might ease your stomach ache but it won’t heal your belly or the damage done to your intestines. Have you ever tried to sleep with a horrible stomach ache? It’s nearly impossible. When I eventually get to bed tonight, I will inevitably lay there tossing and turning until I have to get up in the morning.

Things will get better. I will get smarter about food choices and be more careful about going out to eat. It’s very difficult to trust that restaurants can fully protect you and understand the severity of gluten poisoning. It’s ultimately my responsibility to protect myself and in the future I’ll do a little more research before heading out to eat just because they have a gluten free menu. You live and you learn. The most mistakes I make, the more educated I become on this topic!

xo

The Pretty Little Celiac

 

  • Cindy G. says:

    It’s really too bad that you can’t enjoy a meal which you think is gluten-free without being worried about going through what you just described. It’s unfortunate that you still have to thoroughly research the menu so that you can be sure you aren’t eating something which makes you ill. Do you think you’ll let the restaurant management know about this, so that they’ll examine their menu more closely? I really hope this doesn’t happen again. Take care, and I hope this runs its course quickly.

     

    • PrettyLittleCeliac says:

      Hi Cindy!
      Thanks for the comment and the well wishes. I am going to send them an email. The owner of the place we went typically has very safe food practices and I’ve never gotten ill at any of his other places. I think they should know about this event because they are gluten sensitive. Hopefully you enjoyed my blogs! I have so much more to say on Gluten and Celiac.

      Rebecca

       

      • Betsy says:

        When I go out to eat or go to a party I only eat what is suppose to be gluten free. Most people try to make gluten free foods for me, but mistakes are made. So to be safe I take two Gluten Cutters . You can find them at Walmart’s, Walgreens and CVS makes there own brand of Gluten Cutters. Gluten Cutters are made by a company called Healthy Digestives. They work for me. I am 58 years old and was diagnosed with celiac as a baby and then again 20 years ago after having my babies. Believe me it only takes crumbs to make me sick. My daughter is also celiac and finds that if she takes two Gluten Cutters before eating a meal of gluten she is fine. I am not brave enough to try that. I have been on a strict diet for 19 years now and it is wonderful to finally have something to keep me well so I can now enjoy going out to eat without worries.

         

  • Amy says:

    Rebecca,
    I just wanted to thank you for your blog. I just found out this past summer I have celiacs and have been battling with stomach pain my whole life. Reading your blog felt like I was reading my own life story. I’ve gone through the same things when it comes to my battle with gluten. I’ve also started to notice my stomach doesn’t seem to like lactose either. Did you get tested for that when you noticed? I have tried to completely cut gluten out but I’m still having stomach problems and I think it’s the lactose to blame. Your help is greatly appreciated!
    Thanks so much!
    Amy

     

    • PrettyLittleCeliac says:

      Hi Amy-

      I’m so glad you found my blog because I wish I had a resource that I really liked when I was diagnosed. I’m continuing to add content each week so hopefully we can continue to share stories & I can be a support to you.

      The lactose thing is new since I really focused on eating gluten free. We cook a lot more at home and that allowed me to eliminate questionable food and food handling. I noticed it more which I’m finding is common. I’m actually in the middle of writing a blog post about my observations with lactose. My suggestion is to go totally gluten free, control what you are eating and then try different foods and see how you feel.

      I find that I actually like the lactaid milk and lactose free sour cream better than the original.

      Did you like my facebook page? I post a lot In there too!

      http://Www.facebook.com/prettylittleceliac

      Feel free to email me with anymore questions!

      Rebecca

       

  • Mandy says:

    I have to say that its nice to see that someone else describes the same symptoms, the only difference for me is that on that three hour mark, I vomit off and on for about two hours, I can’t get up, I’m in the fetal position, and feel like I’m dying. It happened today, I ate at my fave restaurant, which I’ve never had issues with before, and was poisoned. :( After throwing up every single ounce of anything I have in me, my stomach ache will remain for a few more hours but the body aches are soooooo terrible! I feel like I got run over! I don’t cheat on purpose, in fact, I’ve been gluten free for probably six plus years, and I had almost forgotten (almost, mind you) how bad it feels to have gluten in my system. None of my friends or family have Celiac so they even though they see the outcome of accidental intake with me, they can’t understand the intense, horrible feelings that accompany it. As much as I wish no one suffers the same fate as me, it was nice to read your blog and see that someone does understand what it feels like. Thanks!

     

    • PrettyLittleCeliac says:

      Hi Mandy-

      Thank so much for your reply. I struggle as well with people thinking it is just a “stomach ache” or that I can just flush it out of my system. I get crazy headaches and neck pain also and I’m noticing the symptoms getting stronger the longer I go without gluten. I’ve also noticed that some things cause a greater reaction than others and I’m trying to pinpoint what that is so I can know the main triggers. I started the blog for that exact reason, people like us that other people think are over reacting about the symptoms. They don’t realize how serious it really is to be “glutened.”

      Thanks for stopping by and I hope we can share other stories as well. If you have any great ones, don’t forget to enter my contest!

      Rebecca

       

  • laura west kong (@laurawestkong) says:

    Wow, you’re brave to eat that pretzel! I haven’t been able to bring myself to eat anything like that. Too scary. Hope you’re feeling better!

     

  • celiacandallergyadventures says:

    I just had my first experience with this! I have no idea what I accidentally ate, because I’m extremely careful. But all these symptoms that had gone away after going gluten-free, suddenly came back with a vengeance. Not just the stomach pain, but eczema, itchiness, irritability, heartburn, headache, feeling mentally “foggy,” … It’s so much worse when you go without it for a while and then ingest it. You’re right, I think our bodies do adjust to it – kind of like alcoholics who are drinking a lot and often – they develop a tolerance and can drink large quantities. But if they cut it out completely and then have it again, it will take much smaller amounts to reach the same effects.

     

  • Emily R Weidenbach says:

    AHHH! I feel you so much! It is the worst thing in the whole world, one time I ate pizza from a local pizza place. The manager swore it was gluten free…well my stomach told me it was not within about 10 mins. Worst feeling ever and for me it lasts for weeks. *hugs*

     

    • PrettyLittleCeliac says:

      Such a high rate of cross contamination at pizza places if they don’t handle it properly! All that flour flying all over the place….

       

      • Emily R Weidenbach says:

        Yeah he actually gave me a regular pizza. I called the coroprate office and they delt with it. It was scary!

         

  • Sarah casebolt says:

    I feel the same way and have all weekend.
    I ate something with gluten but no idea what.
    Tomorrow I have to work, be a single mom as always and deal as well as dig deep. Sitting here near tears. I with you…tummy aches and all. Feel better friend.

     

    • PrettyLittleCeliac says:

      Sarah –

      you are a rockstar :)

       

  • Peggy Kinter says:

    I break out in blisters on my face, and my arms,I hate this Celiac so bad…thank you for this website you have brought to us

     

  • Tracey Black says:

    Thanks for sharing your story. My husband is allergic to gluten, soy, and eggs – and has to be on a candida-free diet, which is basically no starch. It’s really harsh. He didn’t have symptoms like this but he had chronic fatigue and arthritis flare-ups. He’s been on this crazy diet for about 6 weeks now and he’s still not feeling better, but his doctor said that it could take up to 6 months to feel better. It’s crazy how closely tied our stomachs are to the rest of our body.

     

  • pam says:

    Rebecca
    Thanks for all your post. I finally found someone who seems to be as sensitive as I am. It usually takes me about a week to settle back down and I blow up to about 7 months preggers! lol I am even starting to have problems with preservatives in meats bought at the grocery store. It took over 6 yrs for them to figure out what was wrong with me, and many many medical test and of course as much money as they could get from me since I do not have insurance. I had gotten so bad that before I was even 40 yrs old a neurologist told me to quit my job and go file for disability that I was permanently handicapped and it would only get worse with time. When told there was no sign of a reason for nerve damage, but mind you I was told I had suffered 2 small strokes; hello that I didn’t even know about, that it was all a nutritional thing, I left his office went home and ordered a Bow Flex machine and within 2 months was off the cane. I still can’t seem to get past the 100 lb mark which is sad since I am 5’9″ tall. My thought was that if I work out the body would demand the nutrition it needed to survive and for a little bit that worked. But constant workouts are not something my body can take, with the joint stiffness and the osteoporosis that at age 42, they tell me my bones are that of a 70 yr old as well as my intestines, I have had to cut back on the workouts.
    I have found my biggest problem is finding good things to eat since most of my life I ate things out of a bag served over a counter, a box, or a can. So anything you find especially appealing please feel free to share with those of us always looking for something good GOOD being the key word there and that doesn’t cost a small fortune. Which I don’t know if you have noticed but gluten free is extremely expensive. Or maybe I should say the gluten free baked goods are expensive. And the better they taste the more expensive they are. It’s like a big conspiracy to keep the american public eating foods that we have manufactured to turn on and destroy our bodies. I am trying right now to convince myself to buy a loaf of paleo coconut bread that runs $11 a loaf! Anyway don’t let me get started on that end of things. I just wanted to say.
    Thanks for your sharing it is VERY helpful and I look forward to reading more.

     

    • PrettyLittleCeliac says:

      Welcome Pam! I feel your pain (literally & figuratively). Part of my problem is that I hate cooking & I don’t want to buy a ton of ingredients – which most of these gluten free cook books require! I’m eating pretty plain these days….

       

  • brenlee129 says:

    I have been glutened at restaurants that claim to be gluten friendly too. The sad part about it is when I’m home sick all week I wish I had eaten Chick Fil A or my mom’s lasagna instead. At least I would have enjoyed being glutened! Instead I had something “gluten free” that tasted like cardboard!

     

  • Kim Reichert says:

    It’s comforting to hear I’m not the only one who “tests” my tummy on occasion. I will be doing really well and then go to a dinner at friends or one of my grandkids birthday parties and think “I’ve been really good so one little piece of cake or cookie won’t kill me”. And like you, within 6-8 hours I am stuck in the bathroom with horrific stomach cramps and diarrea. It will last for days. I use to try to blame it on my arthritis meds or something else. Now my husband will say ” don’t do it, you will be sorry”. He is my voice of reason! I will also get terrible migrains and my arthritis will flair up and I just want to stay in bed and pull the covers over my head for days! Then I beat myself up for being soooo stupid. The funny thing is, I was tested for Celiac disease and the results were “inconclusive”. Then why does this happen every time wheat touches my stomach? I also sometimes have problems with dairy products. Not always but sometimes it causes the same symptoms as wheat. I have decided that no matter what the tests show, my body knows best! While staying off wheat and dairy won’t cure my degenerative arthritis or nasal allergies, it certainly helps my symptoms and allows me to enjoy playing with my grandkids, riding my horses, walking my dogs and waking up to a good day. Thank you so much for your page!

     

  • PrettyLittleCeliac says:

    Hi Kim!

    Thanks for stopping by! I’m glad you are enjoying my blog and it’s comforting for me as well to know I’m not the only one that does this!!

    Rebecca

     

  • Kathy Mc says:

    I am extremely sad today as my diagnosed Celiac 5 year old granddaughter has just spent the last 4 days with extreme vomiting within 6 hours (10 times the first 24 hours) and diarrhea, and complete lifelessness from Reese Valentine heart candy that I bought for her during a Valentine celebration at my house. Reese has been my go-to candy for her for the last 4 years since she was diagnosed with Celiac disease at 22 months old. I found out right away that Reese peanut butter cups were safe and Gluten free and I have been so comfortable with that fact. I have always bought the Easter eggs and Christmas candy for her too. There is nothing on “this” package label that states “contains wheat/wheat flour.” After researching what went wrong, I read Hershey online that the seasonal shapes are not guaranteed gluten free. I can’t believe this. Why would they ever make some Reese cups gluten free and then “fool” us by not making all of them gluten free? I feel totally mislead. I believe Hershey would die if they saw my little 5 year old the past four days. Her little body has been extremely lifeless, and she has slept non stop except for when she is vomiting. She only has sipped a little water and has not eaten a thing for 4 days. She only weighed 45 lbs. and lost 5 lbs. this week. After reading some other blogs, I can see she is an extreme case. She was completely poisoned. Not to mention that parents had to take off work all these days. I have been communicating with Hershey to change this.
    Sincerely,
    Kathy Mc

     

    • Rebecca says:

      I am so sorry to hear this. It breaks my heart! This story is the perfect one (unfortunately) for advocacy on proper labeling of gluten on foods in the united states. Canada is there, why aren’t we?

       

  • Kim says:

    Hi guys! I have struggled with “stomach issues” my entire life but most severely since the birth of my oldest daughter (11). I went to one GI after another with no answers. More recently I have been suffering from chronic fatigue and extreme body and joint pain. plus i feel “sick” most of the time. I was diagnosed with fibromyalgia and my dr referred me to a GI bc my vitamin levels are staying extremely low. I am scheduled for a colonoscopy, endoscopy bloodwork, and biopsy. She mentioned celiacs. I’m a skeptic with doctors bc of the hard time I have had over the last decade with them never really finding answers but treating me to death. I refuse to believe at 31 everything in my body is completely failing me. It has to all be linked somehow. I’m really scared that i will be positive for celiacs but test negative and spend another decade with my mystery diagnosis. Any suggestions on what I should look for with the testing or what questions to ask?

     

    • Rebecca says:

      Kim did you see my post about questions to ask your doctor at your first appointment? I am also 31 and had my body fall apart which ended up giving me the celiac diagnosis. Just don’t stop eating gluten until after your appointment. They won’t be able to adequately test for the problems if you stop eating it before your tests. Then if you are going gluten-free, you have to stop eating it completely or you will never get better. We are a great little celiac community here and even just gluten-free. We are all here to support you. I’m on twitter and facebook if you ever need us!

       

  • John B says:

    Your story has to be the worst news of my life!! I’ve had coeliac for 18 months and not touched anything but recently I’m really craving a jammy donut and thought one wont hurt me apart from a bad tummy but it’ll be wirth it. How wrong am I, it looks like ill have to avoid it now. I hope your happy!!!! Seriously though I’m pleased I read this. Thank you for been a human guinea pig.

    John

     

  • Gretchen says:

    I am so happy I stumbled across this blog! Im 16 years old and all the food teenagers want is filled with gluten! I have to admit I cheat a lot… And I sure do pay for it. My stomach hurts for an entire week and theres nothing you can do but “wait it out”… Story of us Celiac peoples lives!! Ive been gluten free for 6 months now and i still have horrible abdominal pain. Is that normal?

    Thanks, Gretchen

     

  • Betsy says:

    I have celiac and have been on a gluten free diet for about 20 years. I can’t count the times that I have been poisoned by cross contamination and human error. It is unfortunate that alls you can do is ride it out and hope that feeling like death doesn’t last long . But I have recently stumbled apron a product called GULTEN CUTTER you can find it at Walmart’s and Walgreens. I take it just before I eat whenever I think there maybe a possibility of being poisoned with gluten. My daughter takes it and can eat gluten and not get sick , I have not been that brave and have not tried taken it and purposely eaten gluten. It is a natural and breaks down the gluten in the upper intestine before it goes to the lower intestine and dose damage. So you may what to give it a try before your next party or restaurant experience.
    Betsy

     

  • Jennifer says:

    I came across your blog after having reaction to food served at a restaurant this weekend. My story, at the end of May 2013 I had a terrible stomach flu. It lasted 10 days. It was the worst I’ve ever felt and I remember at the time, this didn’t feel normal for me. I was in the hospital 3 times in a two week period due to extreme vomiting and dehydration and blood work that showed I was fighting a terrible infection. Then I was in ER at least once a week until the end of June when I was hospitalized for 5 days because I would feel terrible for 12 hours – vomiting, noise and light sensitive, foggy brained, etc – everytime I needed to have a BM that would never happen. Then like a light switch turning on, I felt fine for several hours and the cycle would start again. After 5 days, several tests and seeing a GI specialist in the hospital, I was told to go home as I’d get better nutrition and told I had developed IBS and a possible food allergy from the severe flu I had.

    I saw a Naturopath and he had me go on an Elimination Diet, which was the hardest thing I have ever done. In my 39 years, I’ve never had to read labels or watch what I eat – except when I had my gallbladder removed 2 years ago. Anyways, long story short, I cheated on the elimination diet and narrowed it down to having intense vomiting and dehydration episodes and feeling like a brick was in my stomach for several hours about 10 hours after eating food that had gluten, starch or alcohal in it. I would end up in the hospital to be rehydrated and to get IV anti-nausea drugs to help me. This weekend I got sick after eating at a restaurant and narrowed it down to a gluten or starch that did it, though the restaurant denied giving me gluten (they did it was in the chicken broth in my rice flavouring). I believe I have a gluten allergy and am very sensitive to cross contamination because the gluten free products I am eating now do contain some starches and I haven’t had issues.

    This has been such a difficult time for me. I have lost over 20 pounds since June 2013 – the first 15 pounds coming off in 3 weeks, the rest by cutting gluten and starchy foods out of my diet. I am reading online and I rarely see people who have episodes like mine. Does anyone else out there have vomiting episodes after consuming gluten and if so, how long after eating? (mine is about 10 hours after consuming food) I don’t have stomach pain but I do have a stomach burning and I get adrenaline surges and frequent urination my stomach feels like a brick and clothing resting on it is very uncomfortable and i feel a lot of pressure. Am I alone in these symptoms? Are these common symptoms for celiacs?

     

  • Amanda says:

    Hey Rebecca,

    I so appreciate your blog. I have always had digestive issues, but in 2006 i started getting severe hives, that.no one could figure out the trigger. Recently it started on my palms, so i decided to find out what i was allergic to. I went gluten free & dairy free for like 4 days. Noticed nothing wad changing and went on.vacation, and ate whatever i wanted. Oh boy was i gasy, bloated, gurgling gut, severe intergestion, burping. On the 12hr drive home, i waslike upchuck vomiting. Next i was in the hospital. I went gluten free again, but i dont understand its a week and i fluctuate from feeling better to completely slammed with bid E.T.

     

    • Amanda says:

      Sorry my phone dislikes me as much as my gut. lol. So i im getting slammed with stomach (intergestion) gurgling belly, the Big D, randomly on my very stricked gf diet. I havent had a normal bm in i dont know how long. Is it normal to suffer for a period of time after you go gluten free. I thought you’re supposed to feel 10x better. Im miserable!!!! Thank you for puting uourself out

       

      • Amanda says:

        Ahaha just rediculous… Thank you for putting yourself out there to help us figure our way through the stomach cramps

        Lets get well,
        Amanda

         

        • Karah says:

          It can take awhile (even months) to feel better. Many times after you first go gluten free you don’t realize how many items have gluten hidden in them. Check things like gum, mints, soups ect. I couldn’t figure out why my stomach would bloat up randomly until I found out the gum I was chewing contained it. Another thing you may want to think about is going on a probiotic or taking something like Papaya enzymes after you eat. Your body won’t be able to break down food very well because of the damage to your gut.

           

  • Wendy L says:

    Water, Water, Water –
    I have negative reactions to MSG and aspartame as well as gluten.
    When I feel that I have been exposed to one of these, I drink lots of water to help process the bad stuff through my system faster.

     

  • Tim says:

    So happy to find this info. The swollen joints and head fog really hit home for me. Also, my gut feels like it’s trying to process nails and screws. I’ve been in a steady state of “attack” since Thanksgiving. It’s time to start healing. Thank you for the info.

     

  • Krissy says:

    I want to say, since I was 12 years old I have had stomach issues. Severe constipation, stomach pains, and occasional diarrhea with esophageal spasms- horrible. I have lived with debilitating stomach issues for years being blown over and just being told I had IBS and acid reflux disease. I am no doctor, but I KNEW what I was dealing with was more than IBS, and I was forced to live in agony every day (who really takes kids seriously- it is sad). It wasn’t until after I had my son two years ago that my symptoms flip-flopped. I started having diarrhea every day, then multiple times a day, and then the barfing started. I was literally living in the bathroom. I had to make an appt with the gastroenterologist, and while I waited for my appt date, I decided to take a hold of my own health. I did what we are told not to do, and googled away. It had to be Celiac’s or Crohn’s and I took charge and started with cutting out gluten and educating myself more on nutrition. I didn’t need the biopsy, colonoscopy, or blood work to come back from the doctor’s office because my stomach was 75% better by the time it was confirmed. I am a very careful Celiac, and I rarely eat anything out, and usually when I do try to take a chance (even at places who offer ‘gluten-free’), I usually will pay for it. It isn’t worth being glued to the toilet with my head in a trash can. My violent poisoning will onset anywhere from an hour to 5 hours from ingesting toxic gluten. I ate a contaminated salad that I bought three days ago and I am still recovering from it. I just hope that everyone here who has spoken up and shared their stories will help someone. More and more research is showing that cases of Celiac’s Disease ranges from constipation to severe diarrhea and vomiting. Be your own advocate… no one should have to suffer. Thanks, Pretty Little Celiac, for starting this… awareness is key. Feel better everyone!

     

  • Joey says:

    I like how you break down the time line for the pretzel. I usually know in two hours myself. One night at a friend’s house, I poured myself a glass of wine. It was dark with a foam on top. I took a sip as if in a trance. Just as I went for the second sip, the host said; “you know that’s beer right?” Those damn Trappist are disguising beer in wine bottles. Who knew? It was so good. The denial was so strong. Later in the evening, I thought; ‘gee, I’m full.’ It was the bloat. Ugh, the bloat! I woke up in the middle of the night in abdominal pain. Only until after being gluten free, did I link my sleeplessness to my diet after waking up in abdominal pain or excessive farting.

    I’ve been gluten free for six months. My IGA Panel was normal, but my primary doctor recommended going gluten free to see how I felt. I’ve had IBS, reflux and Eczema for years. All went away on a GF diet, until I started eating out again. “Gluten Free” isn’t gluten free. I was still skeptical though. So I went ahead to see a GI doctor and whatever I said, he felt warranted an endoscopy, BUT he wants me to liberalize the gluten. To be honest, I’m a little scared. It makes me feel like crap. Also, I cheated this weekend at a holiday party cuz I didn’t want to be the glutard eating salad and rice. Welcome back all my old GI symptoms. Today I was light headed. Is that the brain fog??? I felt out of it all day, but almost four days later. I’m applying for grad school and taking the GRE next month, and I can’t afford to be out of it. Recommendations or thoughts.

     

  • Kate says:

    I am not diagnosed celiac but I am sensitive and irritated by gluten, among other things. It’s hard for me to not cheat because I am not always affected at first. One too many cheats and I am right there with you on intense stomach aches, bloating, immediate runny nose and swollen sinuses, brain fog, diarrhea, flaky skin rash. However I can tolerate things like a hand full of cookies or a bagel here and there on a good day. So take this with a grain of salt.

    Have you tried eating paleo? It eliminates all the gluten-full baddies without making me feel like I’m deprived, or like I’m going to be poisoned. For me, I take it further and avoid nuts, eggs, and seeds. It changed the way I look at food. I eat meats, fruits, veggies, and lots of good fats. I even make my own spices from stuff in the produce aisle at the grocery store because I know it’s safe! It’s so easy. And what person wouldn’t drool over a meal of juicy steak, carefully chosen bacon, sweet potato, and broccoli?

    When I do mess up and cheat (pretzels give me the worst stomach ache, hands down, after the first bite) I reach for raw parsley or cilantro. Something about it halts the ache immediately. If I intentionally cheat I eat an entire bunch beforehand. This may not help if you’ve got it bad but I know how it feels to be desperate, and worst case it won’t do anything but best case may work.

    I don’t pretend to have it as bad as some people, but I can’t carry on glutening myself. My last episode led me to your site in the hopes of motivating myself to not cheat. It’s just hard sometimes to be the odd one out. I felt compelled to comment – I hope my little tricks can help someone.

     

  • Angela says:

    Can I just say DITTO to all of the above…Last month I had 1 slice of Pizza from NYC and was in so much pain for a week…I eventually went to the ER and my gallbladder had to be removed…Since then I have been totally gluten free…but it’s still so confusing because I can eat Italian bread from the bakery with no problems at all and my local pizza place has thin pizza that doesn’t bother me…I chickened out on the upper endoscopy 5 years ago and just decided to cut down on gluten but I really need to get tested…I had my appendix removed about 20 years ago then my gallbladder recently and I’m thinking it’s all related to gluten and I’m so afraid of what’s next!! It does so much damage to our bodies!! On a positive note, the joint aches and swelling has gone down and that foggy feeling is GONE! Like a miracle! Almost like I couldn’t wake up and now my brain is so clear and alert!!

     

  • Kristine says:

    I have a 3 month old that seems to have a reaction when I eat dairy and gluten. I also have Celiac disease. I have been off gluten for 1.5 years. But last week I rationalized that I must not have it any more so I ate some breaded chicken. The next day my son had mucus stools, congestion, projectile vomiting, and bloating. No more vomiting after two days but a low grade fever, diarrhea, and a rash like mine. I had bloating, stomach cramps, hair falling out, my gluten rash on arm, and a week later I feel better but now have diarrhea today. Could it be a virus because that would seem like a big coincidence? Have you ever had those symptoms?

     

  • Betsy says:

    Go to walmarts or walgreens and buy Gluten Cutters and take them when you go out to eat or anywhere you could accidentally be glutened it is a great way to keep safe.